William was diagnosed with cystic fibrosis at just 2 weeks old. He was the first child picked up to have the disease from the heel prick test in our area. We had no known history of the disease within our family and this came as a huge shock. William's dad therefore left us as he felt William
couldn’t possibly be his as this condition wasn’t in his family!
William started a huge amount of daily nebulisers, medicine and physio treatments and sadly was admitted to Kings College Hospital on 23rd December 2008 for a lung operation and a 2 week course of iv antibiotics. He battled with his weight and we were in constant fears of him needing a feeding tube but luckily he is now 12 and we avoided one!!
At the age of 4, due to the regular iv antibiotics he needed, we decided it was time to agree to a portacath. This lasted until he was 8 and then it broke so he had a new one fitted, he had another surgery in the hope that I could learn how to give intravenous antibiotics at home and he could live a more ‘normal’ life.
William has had so many courses of iv antibiotics. On average he takes about 30/40 tablets a day along with 3/5 nebulisers daily and a strict intense physio routine. William has Just started secondary school and is currently back in hospital after having his portacath removed and a bronchoscopy. We will be here for 2 weeks. He is missing his 2 younger sisters and his brother along with my husband who took William on like his own from the age of 2 and is in the process of adopting him! There is a new drug that’s been given the go ahead that although isn’t a cure could give William a bright healthy future! Fingers crossed