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LoveQuiltsUK - George K's quilt

George K's quilt    (Quilt Closed)

Born:2007
Illness: Dravet syndrome

Theme: Mr Tumble

Date opened: 5th Jun 2021
Date closed: 9th Jun 2021
Deadline: 26th Oct 2021

Photo of George K

Child Interests

Mr Tumble/Something Special -all characters.
Teletubbies.
In the Night Garden - all characters.
Favourite colours are blue and red.
Trains, cars, pony, white rabbits, trees,rivers, boats, moon & stars, rockets and balloons.





Biography

George had his first seizure at 12 weeks old and has had many thousands more since. Doctors didn’t know what was wrong and had him on and off all different epilepsy drugs with awful side effects. It wasn’t until he was 18 months old a blood test confirmed it was Dravet syndrome with a positive SCN1A test. His meds were changed again for some that were for sodium channel epilepsy and the seizures were slightly more under control but there were still many emergency hospital admissions with prolonged seizures.
He has fought so many battles and when he was 2 years old he had severe pneumonia and was in icu for 2 months with his right lung completely infected and his left lung partially. He was getting worse and antibiotics wouldn’t work. As a last chance he was sent urgently to Glenfield Hospital for open lung surgery and went straight from the ambulance and into theatre - still on life support. He has a massive scar from front to back but he’s alive! After a week he was weaned off life support and went into HDU to recover and the antibiotics started to work, after a long time he finally came home.
His health continued to be problematic and he was on antibiotics every day for three years due to so many chest infections. Aged 7 years he had a PEG as he was so underweight. He also has bowel problems and double incontinence. It took a long time but he started to gain weight and feel better.
He was hardly at school during his early years due to illness and seizures. He still has seizures and a low immune system. He cannot speak at all and has profound learning difficulties so it’s difficult to know how he’s feeling, but most of the time he’s very happy.
He has a crouch gait and his feet are flat and pronated and shoes make them sore. He’s had X-rays on his feet, legs, pelvis and hips as walking is getting hard. He uses a wheelchair for travelling as he tires easily and for when he has seizures whilst out of our home.
He is of high risk of SUDEP so I never know if he will make it through the night. It affects every aspect if his life.









Patterns


1.LQ Files Mr tumble with balloons Stitcher: Paula Dewar, Glasgow, Scotland
In Progress

2.Grandad tumble from lq filesStitcher: Jodie Balaam, Lawshall, England
In Progress

3.LQ Files Mr Tumble's Spotty BagStitcher: Nicola, St Albans, UK
In Progress

4.Mr Tumble Star Badge, from LQUK filesStitcher: Deborah Found-Bloodworth, Uxbridge, Middx, UK
In Progress

5.LQ file Mr Tumble Waist coats and shirtsStitcher: Elaina, Sutton Coldfield, England
In Progress

6.LQUK files Mr Tumble wavingStitcher: Sylvia, Clacton, England
In Progress

7.Mr Tumble bowtie pattern from LQUK filesStitcher: Diane, Middlesex, UK
In Progress

8.Tumble tapp from the LQ files yellow rectangle with blue red and green buttons Stitcher: Julie, Yateley, Hampshire
In Progress

9.Own design Aunt Polly from Mr tumbleStitcher: C McDonald, Altrincham, UK
In Progress

10.LQ files by Raven Darkmoon Mr Tumble thumbs upStitcher: Marilyn Foyle, Biggleswade, UK
In Progress

11.LQ pattern by pat brown Mr tumble LQ pattern by pat brownStitcher: Jannine Hall, Stourbridge, England
In Progress

12.Label Stitcher: Jan G, Hull, UK
In Progress


Squares received

None yet. (Quilt opened on 5th Jun 2021)


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