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LoveQuiltsUK - Toby G's quilt

Toby G's quilt    (Quilt Closed)

Illness: Occular Cerebral Renal Syndrome (Lowe Syndrome)

Theme: Robots

Date opened: 17th Jul 2021
Date closed: 22nd Jul 2021
Deadline: 26th Nov 2021

Photo of Toby G

Child Interests

Orange, grey.
Light blue.



Toby had a complicated birth, requiring assistance due to a short umbilical cord that snapped when he was pulled. He was blue and floppy.

He spent 3 days in the neonatal unit where it was discovered he had bilateral cataracts. These were removed separately at 6 and 8 weeks respectively. At the same point, a biopsy confirmed Toby had Lowe Syndrome.

Toby then developed glaucoma, which he required another surgery for. He is now on medicated eyedrops to manage this. For a number of years Toby wore glasses. He now wears contact lenses but still has poor vision. In time he will be apparently required to wear glasses and contacts to account for both near and far sight purposes. Further operations are expected on his eyes, eventually.

Occupational therapy and physiotherapy were visiting Toby twice a week until he started preschool at the special needs school he is still at now. These factors are now mostly managed in the school.

Toby has ongoing appointments with specialists at the hospital, both with the pediatric nephrologist, and the pediatric optometrist.

Toby is happy at his special needs school, and is usually happy enough in himself. However, Toby's resulting autism created a number of challenging behaviours.

Recently, he was diagnosed with epilepsy, after suffering several minor seizures followed by a severe one which saw him hospitalised for a few days. The medication he is now taking to manage this has altered his personality in such a way that he has become aggressive towards us, physically injuring us. His doctor is in the process of changing this medication over, as we hope this will resolve things.

Toby is unable to communicate and cannot walk, but he makes himself understood in other ways.


1.Stitcher: Gilly, Ellesmore Port, England

2.Tinymodernist cross stitch pattern Three robots Stitcher: Jodie Balaam, Lawshall, England

3.Modern 3 robots from Heleneworkshop in Etsy Will stitch 2 out of the 3 robots in the patternStitcher: Karen Burton, Peterborough, UK
In Progress

4. Old copy of World of Cross Stitching - Robot bookmark, tall thin robot, I will stitch several in different coloursStitcher: Kay, Doncaster, UK

5.Robot holding balloons with words “Be Happy”Stitcher: Emma Swift, Aberdeen, UK
In Progress

6.Https:// "Robot love" pattern from Etsy - 2 Robots side by sideStitcher: Angela, New Zealand
In Progress

7.Old magazine, (designed by Fiona Baker) Robot cards (will do several of them)Stitcher: Leanne Malcolmson, Romsey, UK

8.Etsy. PinoyStitch Baby robots, mini cross stitch pattern, series 1 Four baby robots. Will select four from pattern Stitcher: Gabriele Pearson, Cromarty, UK
In Progress Colourful funny robot from Deviantart.comStitcher: Gail Carr-Walker, Newcastle, UK
In Progress

10.Star Wars Cross Stitch BB8Stitcher: Deborah Found-Bloodworth, Uxbridge, Middx, UK
In Progress

11.Family of robots from a magazine Robot family Stitcher: Samantha , Bournemouth, England
In Progress

12.Label Stitcher: Jenny Elkington, Boston, UK

Squares received

Cross stitch square for Toby G's quilt
Stitched by: Jenny Elkington
Submitted: Aug 2021

Cross stitch square for Toby G's quilt
Stitched by: Gilly
Submitted: Dec 2016

Cross stitch square for Toby G's quilt
Stitched by: Jodie Balaam
Submitted: Jul 2021

Cross stitch square for Toby G's quilt
Stitched by: Kay
Submitted: Aug 2021

Cross stitch square for Toby G's quilt
Stitched by: Leanne Malcolmson
Submitted: Aug 2021


Card for Toby G
Stitched by: Sandra

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