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LoveQuiltsUK - Ashley W's quilt

Ashley W's quilt    (Quilt Closed)

Born:2007
Illness: Duchenne Muscular Dystrophy

Theme: Harry Potter/Star Wars

Date opened: 18th Aug 2021
Date closed: 1st Sep 2021
Deadline: 26th Dec 2021

Photo of Ashley W

Theme details

Harry Potter/Star Wars - Harry Potter - his favourite house is Gryffindor. Since this is a mixed theme quilt, can we avoid the house squares that say Ravenclaw, Hufflepuff and Slytherin on them in favour of squares with the HP characters on them. (The Gryffindor square is fine!)



Biography

Ashley was diagnosed with Duchenne Muscular Dystrophy (DMD) after 3 years of trying to get the right diagnosis. DMD is a truly heartbreaking progressive condition which takes away Ashley’s abilities over time. It is a life limiting condition and sadly 100% fatal currently. DMD mainly affects boys and occurs in 1 for every 3500 live male births. Boys are usually full time wheelchair users by their early teens. Life expectancy has increased with improved standards of care but remains mid to late 20’s. Sadly too many of the DMD community see deaths from the age of 11.

Ashley has been involved in clinical trials from the age of 7. His first was a study to consider the impact of daily steroid use and his most recent trial was to see whether a breast cancer treatment (Tamoxifen) can offer some benefit. There are no treatments for Ashley that will treat the underlying cause. Ashley inspired our family to set up Action for Ashley and we raised and donated £160,000 to specific research projects for potential treatments that might help Ashley and others like him.

Ashley is the kindest, loving and most thoughtful human I know. Despite his physical challenges and knowing more about the prognosis of his condition, he just gets on with life. He is the captain of the Hull & East Yorkshire Powered Wheelchair Football Academy and will look forward to returning to weekly training post Covid in his new football wheelchair which was funded by supporters and a sports charity. Ashley is a very special boy that loves Star Wars, Harry Potter, Superheroes and his PlayStation. I would like to thank Love Quilts UK for the time and dedication of those involved.



Patterns


1.Stitcher: Jenny, Rushden, UK
Received

2.Stitcher: Jenny, Rushden, UK
Received

3.Stitcher: Sylvia, Clacton, England
Received

4.Stitcher: Karen Hockin, Southampton, England
Received

5.Stitcher: Ilana, Oxford, UK
Received

6.Stitcher: Ilana, Oxford, UK
Received

7.Star Wars logo Stitcher: Gail Carr-Walker, Newcastle, UK
In Progress

8.Gryffindor house square from lq filesStitcher: Jodie Balaam, Lawshall, England
Received

9.LQ files by Merete The Golden TrioStitcher: Sandra, Shefford, England
In Progress

10.C3POStitcher: Jan G, Hull, UK
In Progress

11.From files, Merete’s design Hogwarts crestStitcher: Lilian, Alleroed, Denmark
In Progress

12.Label Stitcher: Merete, Allerød, Denmark
In Progress


Squares received

Cross stitch square for Ashley W's quilt
Stitched by: Jenny
Submitted: Feb 2020

Cross stitch square for Ashley W's quilt
Stitched by: Jenny
Submitted: Feb 2020

Cross stitch square for Ashley W's quilt
Stitched by: Sylvia
Submitted: Jun 2020

Cross stitch square for Ashley W's quilt
Stitched by: Karen Hockin
Submitted: Dec 2020

Cross stitch square for Ashley W's quilt
Stitched by: Ilana
Submitted: Apr 2021

Cross stitch square for Ashley W's quilt
Stitched by: Ilana
Submitted: Apr 2021

Cross stitch square for Ashley W's quilt
Stitched by: Jodie Balaam
Submitted: Aug 2021



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