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LoveQuiltsUK - Ella L's quilt

Ella L's quilt    (Quilt currently being assembled)

Born:2005
Illness: Lennox Gastaut Syndrome and osteoporosis.

Theme: Disney

Quilt currently being assembled
Photo of Ella L

Theme details

Disney - Backfilled quilt



Biography

Ella was born in 2005 our first born . It was around the time she started to walk we noticed her falling over a lot but just thought she was clumsy . At the age of 3 she had her first seizure on the motorway of all places! She was taken to the nearest hospital and epilepsy was discussed. Over the next few years Ella was in and out of hospital with hundreds of seizures daily, she broke many bones, hit her head a lot when having drop attacks and we noticed that she was beginning to lose skills.

Ella was finally diagnosed with a rare uncontrollable form of epilepsy that also causes development regression, Lennox Gastaut Syndrome. She has had brain surgery, vns surgery and countless medications and trials of new medicines and diets over the years, many that sadly haven’t worked or helped.

Ella still has seizures daily mainly in her sleep meaning she is high risk of SUDEP so every night is a worry . She also struggles to walk due to the osteoporosis that has now developed due to high doses of medication and the many years of drop attacks. Ella is the funniest , happiest, smiliest and cheekiest girl , she loves Disney and singing Disney songs with her sisters. She lives life to the full and makes every day for us brighter, she is definitely our inspiration.



Patterns


1.Stitcher: Katrina, Basingstoke, UK
Received

2.Stitcher: Sylvia, Clacton, England
Received

3.Stitcher: Deborah, Leeds, UK
Received

4.Stitcher: Ilana, Oxford, UK
Received

5.Stitcher: Gemma McKnight, Southampton , England
Received

6.Stitcher: Sylvia, Clacton, England
Received

7.Stitcher: Jodie Balaam, Lawshall, England
Received

8.Stitcher: Helen, Swindon, UK
Received

9.Stitcher: Liz , York, UK
Received

10.Stitcher: Jodie Balaam, Lawshall, England
Received

11.Stitcher: Leanne Malcolmson, Romsey, UK
Received

12.Label Stitcher: Jan G, Hull, UK
Received


Squares received

Cross stitch square for Ella L's quilt
Stitched by: Katrina
Submitted: Feb 2020

Cross stitch square for Ella L's quilt
Stitched by: Sylvia
Submitted: Feb 2020

Cross stitch square for Ella L's quilt
Stitched by: Deborah
Submitted: Oct 2020

Cross stitch square for Ella L's quilt
Stitched by: Ilana
Submitted: Nov 2020

Cross stitch square for Ella L's quilt
Stitched by: Gemma McKnight
Submitted: Apr 2021

Cross stitch square for Ella L's quilt
Stitched by: Sylvia
Submitted: Apr 2021

Cross stitch square for Ella L's quilt
Stitched by: Jodie Balaam
Submitted: May 2021

Cross stitch square for Ella L's quilt
Stitched by: Helen
Submitted: May 2021

Cross stitch square for Ella L's quilt
Stitched by: Liz
Submitted: Jun 2021

Cross stitch square for Ella L's quilt
Stitched by: Jodie Balaam
Submitted: Jul 2021

Cross stitch square for Ella L's quilt
Stitched by: Leanne Malcolmson
Submitted: Jul 2021

Cross stitch square for Ella L's quilt
Stitched by: Jan G
Submitted: Nov 2021


Card

Card for Ella L
Stitched by: Unknown

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