Kayla was a happy healthy 3 year old until May 2021 our world changed forever. Kayla was diagnosed with cancer.
Our journey started the week before with a painful leg (what 3yr old doesn't have some kind of leg pain). We went to A and E as she struggled to put weight on her leg to be told it's probably nothing and to keep up with the pain relief. A few days later she had some slight swelling so we went back as the pain wasn't getting any better. We had xrays and bloods but doctors still were not concerned and we were sent home and told if anything comes back we will phone you. 7.22 the following morning we had that phone call to say she had elevated infection levels in her blood and she needs to be seen.
This is where our journey began. We saw multiple doctors and specialists and still had no answers. They admitted us to the ward until Kayla went for an mri ..... we were told she had malignancy in her bones (but still no answers as to what). By the Friday we were in contact with Addenbrooks where it was decided that she needed to have a bone marrow sample taken to see what was happening. We still held on to that little hope that it will be something easy. We went home to spend the weekend with our boys who are 9 and 6. It was the weekend before our eldest turned 9, not the weekend we had planned but he took it all in his stride.
Monday we headed off to Addenbrooks with the hope of coming home. Monday the 17th our world crashed being hit with the words cancer in a 3 Yr old and as a mum and dad trying to make sense to all of this. Dad went home to tell the boys while I was admitted with Kayla not knowing how long for, what cancer she had, how we were going to cope, how was life going to happen. We were scared, confused, our hearts were shattered but having to stay strong for our 3 children.
On the 19th we were given the diagnosis of stage 4 high risk neuroblastoma and we had 18 months of treatment. She has since had 9 rounds of chemo, had a stem cell harvest and had surgery to remove the tumour. On the 23rd Sept we have been told she had relapsed and has 3 new spots so back to chemo we go and hopefully this will get us back on plan for high dose chemo in Great Ormond Street soon.