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LoveQuiltsUK - Megan M's quilt

Megan M's quilt    (Quilt Closed)

Illness: CDKL5

Theme: Minnie Mouse

Date opened: 6th Nov 2021
Date closed: 7th Nov 2021
Deadline: 26th Mar 2022

Photo of Megan M

Child Interests

Megan loves Minnie Mouse, music, listening to her dvds, stories and being outdoors. She also loves swimming and being in her hot tub.
Her favourite colour is red/purple


Megan had her first seizure at 2 weeks old. We didn't know at the time that they were seizures. Epilepsy was diagnosed when she was admitted to hospital at 4 months. She is registered blind, hypotonic and up until last year had a severe scoliosis.

When she was around 2 she started to lose her swallow. An NG tube was fitted followed by a gastrostomy 6 months later. She suffered a lot of vomiting over the years which got so bad that a jej tube was being considered. Her consultant advised us to try blended diet. She has been on BD for almost 2 years and vomiting has more or less stopped.

Last November she was admitted to hospital for a spinal fusion. Her scoliosis was at 90°. Today (31/10) was the day we had to isolate for 2 weeks before surgery which took place on Friday 13th November 2020. She was in theatre for 7.5hrs. She remained in hospital for 16 days. Her vomiting returned due to not being allowed to continue with blended diet, apparently not permitted on HDU. After 10 days of vomiting and bringing back formula on free drainage her consultant allowed blended diet to restart. She was then transferred to a general ward and then allowed home on 28 November.

She has recovered well and was discharged from spinal clinic at her follow up appointment in April. She has continued to thrive and is doing well.


1.Minnie mouse fairy from lq filesStitcher: Gemma Boreham, Suffolk, UK

2.Vervaco kit CR1109052 Minnie Mouse in an oval border with flowersStitcher: Nicola, St Albans, UK
In Progress

3.Ultimate cross stitch collection book Minnie Mouse only from 'Photo Shoot'Stitcher: Pippa, Surrey, UK
In Progress

4.Disney Cross Stitch issue 47 Minnie wearing a flower crownStitcher: Seren Senior, Derby, UK
In Progress

5.Minnie Mouse 3D from the LQ files she is wearing a pink spotty bow & dress Stitcher: Paula Dewar, Glasgow, Scotland
In Progress

6.Ultimate cross stitch Mickey unlimited Minnie holding a green purseStitcher: Jeanne, Pennsylvania, USA
In Progress

7.Disney cross stitch Stitchin' styleStitcher: Emma Robson, Doncaster, England
In Progress

8.Minnie Mouse on the beach from LQ files Stitcher: Gemma McKnight, Southampton , England
In Progress

9.Minnie mouse with headphonesStitcher: Leanne Malcolmson, Romsey, UK
In Progress

10.Minnie talking on the phone. Stitcher: Rebecca, Kettering, Northants, UK
In Progress


12.Label Stitcher: Miss Debbie Elkington, Boston, Lincs, UK
In Progress

Squares received

Cross stitch square for Megan M's quilt
Stitched by: Gemma Boreham
Submitted: Nov 2021

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