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LoveQuiltsUK - Charlie's quilt

Charlie's quilt    (Quilt Open)

Born:2008
Illness: Quadriplegic Cerebral Palsy

Theme: Formula 1/racing cars/chequered flag

Date opened: 27th Nov 2021
Deadline: 26th Mar 2022

Photo of Charlie

Sign up to stitch a square
for Charlie

Theme details

Formula 1/racing cars/chequered flag - Other cards are OK if not enough racing cars are available - more along the luxury cars line rather than the mini metro line!

OK to put some of his favourite animals on the label (see Favourites)



Child Interests

Charlie is a huge Formula 1 fan. He literally knows everything there is to know on it!
His favourite colour is purple, which is Lewis Hamilton’s helmet colour, although he still likes black and turquoise too as they are the Mercedes team colours in F1 which is also his bedroom colour with purple too!
Charlie loves lions and giraffes. We live local to the Yorkshire wildlife park and regularly visit there.

He loves cats and dogs and rabbits, he has 2 dachshund dogs, 5 cats and 1 black French lop rabbit


Biography

Charlie is our first born of 4 boys. Charlie was born via emergency c-section at 37 weeks after having reduced movements. He was born weighing 4lb 10oz. He was born on his nana's birthday.

He spent his first week in hospital in the Neonatal unit till he could feed properly then we could go home.

Although we thought things were going well as new parents, when we think back there were little tell tale signs that something wasn’t quite right. I felt his eye sight wasn’t developing as it should have been, he struggled to drink from his bottles, he made these arm movements which we passed for normal baby behaviour, but all these little things we were experiencing were actually the fact Charlie had cerebral palsy and was also delayed with his development.

When he was 4 months old we were out for the day. We had been walking around some gardens for about 10 minutes when Charlie had stopped breathing, he had gone blue. 2 passers by fortunately who were a nurse and a doctor brought him back whilst we waited for the ambulance.

After so many tests and bloods and more episodes of him stopping breathing and being resuscitated he was finally diagnosed with a rare severe form of epilepsy, West syndrome. Charlie had only recently learned to smile but it all disappeared. He stopped doing it. We were told he may never smile again. We were heartbroken.

I think at that time we didn’t fully comprehend how life would be for Charlie. I think we thought everything would be ok.
Charlie was never a settled baby he always cried so much.

Charlie's first two years went by in a blur, so many hospital appointments, milestones not being met, grieving for a child who you don’t know how long or how his life will be affected, it was one of the hardest times of my life.

Fortunately after 5 months of medication and trials Charlie's seizures had stopped. His smile was back! He even started to laugh!

Charlie is wheelchair bound and he cannot sit unaided and will never walk. He has use of his arms although he is weak but he can work his iPad on his own which he loves to watch his Formula one on you tube and FaceTime his nana who he has an extremely close bond with.

It’s seemed that once he got passed the age of two Charlie started to thrive. He was learning things, he said his first word! Since then we have never looked back! Charlie's vocabulary is amazing. His understanding and communication is second to none.

He has been through so many different operations in his short life already, Botox injections for his spasms, muscles cut and stretched, mic-key button for his fluids and now milk feeds, baclofen pump.
His latest big surgery was literally just short of a year ago Charlie had severe scoliosis. It was affecting his eating and keeping his milk feeds down as the curve was right across his stomach. He’s had spinal rods fitted after a lengthy 9 hour operation which saw him in intensive care after. We really thought we were going to lose him. He’s currently awaiting his next big surgery which is both hips and both feet.

I am so proud of how Charlie copes with all that he’s been through and has yet to go through. He seems to take it all in his stride and with his trademark smile on his face. He’s our pride and joy, our absolute world and he means the same to his 3 younger brothers, even if Charlie does like to boss them around!



Patterns (3 stitchers needed)   (Sign up here)


1.Own design with f1 logo and some tracksStitcher: Gemma Boreham, Suffolk, UK
In Progress

2."Auto Race" by Thea Gouverneur A red F1 car Stitcher: Sharon, Kenilworth, UK
In Progress

3.Alain Prost car and Niki Lauda car from Grandprix Champions by Cavan McGrannStitcher: Pippa, Surrey, UK
In Progress

4.Designed by Diane Machin from Quick & Easy Cross Stitch magazine. Formula 1 car & chequered flag (will change car colour to purple)Stitcher: Nicky, Mytchett, UK
In Progress

5.Grand Prix champions by Cavan McGrann Sampler style design with Sir Jackie Stewart and Sir Jack Brabham, and DC from another website Stitcher: Heather, Littleborough, England
In Progress

6.Own design of Hamilton's racing number in Mercedes team colours. 44 - in turquoise and blackStitcher: Emily, London, England
In Progress

7. Awaiting approval:
Etsy - SevenGnomesStitchery Chequered Flags
Stitcher: Diana Lettice, Spalding, UK
https://www.etsy.com/uk/listing/548019394/checkere...

8. Awaiting approval:
DMC ‘Racing Car’ kit BK1144 F1 car with chequered flag and speedometer
Stitcher: Seren Senior, Derby, UK

9.

10.

11.

12.Awaiting approval: Label
Daschund and other favourite animals
Stitcher: Gail, Lochgelly, Scotland


Squares received

None yet. (Quilt opened on 27th Nov 2021)

Card

Card for Charlie
Stitched by: Gemma Boreham

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