Matylda B's quilt (Quilt Completed) |
| Born: | 2013 |
| Illness: | CFC syndrome, epilepsy, hydrocephalus, Dandy-Walker Syndrome, visually impaired
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Theme: Rainbows
Quilt delivered: 3rd Jul 2022 |
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Thank youIt has arrived! It's the most amazing thing I ever saw. Pic doesn't do justice, it's absolutely amazing, made me cry. Thank you ever so much and a huge thank you to all people who made it. Thank youl
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Finished photos
Quilted by:
Mary
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Individual squares
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Stitched by:
Angela
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Submitted: Feb 2022
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Stitched by:
Becks
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Submitted: Apr 2022
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Stitched by:
Carol West
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Submitted: Feb 2022
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Stitched by:
EE(Beth)Filmer
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Submitted: Feb 2022
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Stitched by:
Ellie
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Submitted: Jan 2022
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Stitched by:
Emma Edwards
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Submitted: Jan 2022
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Stitched by:
Heather C
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Submitted: Mar 2022
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Stitched by:
Helen
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Submitted: May 2021
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Stitched by:
Jeanne
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Submitted: Mar 2022
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Stitched by:
Kay Parke
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Submitted: Apr 2022
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Stitched by:
Nicola
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Submitted: Mar 2022
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Stitched by:
Sharon
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Submitted: May 2022
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Card
Stitched by: Marilyn Foyle |
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BiographyMatylda was born with genetic conditions such as hydrocephalus and mutation to her gene Kras.
She was struggling to eat and so she is peg fed since she was 1 year old.
Matylda's development is delayed both cognitive and physical.
Last year Matylda went into status epilepticus and we nearly lost her. She has uncontrolled epilepsy and is on a ketogenic diet and awaiting vns surgery.
Matylda has brain atrophy which impacts her left side. She spent 5 months in Bristol Children's Hospital as after the status epilepticus she couldn't walk or talk. She is doing well now.
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