Jackson F's quilt    (Quilt Completed)

Thank you

Thank you so much for Jackson's quilt it is beautiful. You are definitely a very talented bunch the detail is amazing. THANK YOU
Love Jackson (his Mam & Sister)

Finished photos

Individual squares

Biography

As soon as Jackson was born he was taken away into intensive care as he did not breathe on his own when the cord was cut. From then on his life has been in and out of hospital with our longest admission being 21 months.

Jackson is currently at home where he receives 24/7 care from his parents. Jackson's primary diagnosis is still under investigation by genetics but he has had some answers along his journey. Jackson can forget to breathe so he is on constant oxygen. He is unable to safely swallow so he was fed direct into his bowel (via JEJ). This was unsuccessful so Jackson is fed direct into his veins intravenously for 13 hours overnight with total parenteral nutrition.

Jackson also has a number of learning disabilities. He is non verbal, he is globally delayed, he has autism spectrum disorder but the thing that Jackson struggles with most is sensory processing disorder.... this means that day to day life for Jackson is very hard. He responds to changes by breath holding or hurting himself. If he has had a tough day this can play out at night with apnoea or dips in his heart rate. He is on overnight SATs monitors which his parents respond to.

Jackson likes to hide under blankets and in tents when he gets overwhelmed. Jackson has recently been assessed by a specialist independent school where he will begin attending next year as even though he is 6.5 years old he has never been able to access any education due to his medical complexities. We are very excited about this.

Despite the amount of time Jackson has spent in hospital he is one of the strongest happiest little boys we have ever met, who is at his happiest watching Peppa Pig and playing with his big sister.