Rylei's quilt    (Quilt Completed)

Thank you

I have attached a picture of Rylei with his gorgeous quilt can't thank you enough x

Finished photos

Individual squares

Card

Stitched by: Kaz Bowen

Biography

Rylei was born 2 weeks early and was floppy at birth and rushed to the special baby unit. He only spent a night in there, never cried as a young baby and had to be woken for feeds. He had really poor muscle tone and would lay and just stare upwards with no eye contact. He didn't reach any milestones.

I knew from birth something was wrong and after brain scans and blood tests had a call from genetics at GOSH that he had a rare chromosome disorder. Rylei didn’t walk until he was 3 with lots of physio input. He also has poor vision and is registered partially sighted with uncontrollable epilepsy. He attends a special school, has lots of hospital visits and has had a peg tube fitted to help with feeding and medication. He is now 14 and is doing ok.