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LoveQuiltsUK - Lillie-Mae B's quilt

Lillie-Mae B's quilt    (Quilt Closed)

Illness: Pontocerebeller hypoplasia type 2!

Theme: Disney characters

Date opened: 23rd Apr 2022
Date closed: 24th Apr 2022
Deadline: 28th Aug 2022

Photo of Lillie-Mae B

Theme details

Disney characters - Especially Frozen characters

Child Interests

Lillie likes Frozen, she also likes Disney films, music and visiting the farm and zoos.
Lillie also loves bright colours.


Lillie-Mae was born with no health issues. She was quite poorly for 5 weeks at 4 1/2 months and at 6 months a nurse was doing Lillie’s 4 month check and noticed Lillie wasn’t tracking. She was referred to the community paediatrician and from then a lot of tests were done. At one year old Lillie was registered blind and also had to have an MRI where it was picked up her cerebellum and pons were very small and also her head was small.

We were referred to genetics who ran lots of blood tests but didn’t come up with any answers. They then sent bloods to Amsterdam under the DDD study, they still had no answers so sent more to another country where they discovered she has pch type 2.

Lillie is blind, she has uncontrollable epilepsy, microcephaly, hypotonia, and dystonia. She’s also fully tube fed, non-verbal and non-mobile. She has sleep apnoea and is going to be put to sleep so they can investigate. It could be floppy muscles in her throat or something wrong with her voice box which could possibly need a small operation. If none of these she will probably need a tracheostomy. Lillie has been through so much and is still so happy and smiling.


1.Esmeralda dancing from lq filesStitcher: Jodie Balaam, Lawshall, England

2.Merete LQ Files Elsa Portrait by MereteStitcher: Sandra, Shefford, England
In Progress

3. By Merete from LQ files Princess portrait AnnaStitcher: Jan G, Hull, UK
In Progress

4.LQ Files Princess MinnieStitcher: Nicola, St Albans, UK

5.Disney a punto croce no 52 Fairy Minnie Mouse in purplesStitcher: Kaz Bowen, Wakefield, UK
In Progress

6.LQ files, by Merete Mickey and friendsStitcher: Helen, Swindon, UK
In Progress

7.Vervaco Ariel from the Little MermaidStitcher: Gemma.H, Glos, UK
In Progress

8.By Beth Filmer from LQ files Sisters Forever - Elsa & Anna Stitcher: EE(Beth)Filmer, Adelaide, Australia
In Progress

9.Close up ariel face Stitcher: Nicola, Elland, UK
In Progress

10.LQ files OlafStitcher: C McDonald, Altrincham, UK

11.LQ Files by Beth Filmer Kristoff from frozenStitcher: Angie, Belper, UK
In Progress

12.Label Stitcher: Erin, Neath, Wales
In Progress

Squares received

Cross stitch square for Lillie-Mae B's quilt
Stitched by: Jodie Balaam
Submitted: May 2022

Cross stitch square for Lillie-Mae B's quilt
Stitched by: Nicola
Submitted: May 2022

Cross stitch square for Lillie-Mae B's quilt
Stitched by: C McDonald
Submitted: May 2022

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