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LoveQuiltsUK - Lillie-Mae B's quilt

Lillie-Mae B's quilt    (Quilt currently being assembled)

Born:2012
Illness: Pontocerebeller hypoplasia type 2!

Theme: Disney characters

Quilt currently being assembled
Photo of Lillie-Mae B

Theme details

Disney characters - Especially Frozen characters



Biography

Lillie-Mae was born with no health issues. She was quite poorly for 5 weeks at 4 1/2 months and at 6 months a nurse was doing Lillie’s 4 month check and noticed Lillie wasn’t tracking. She was referred to the community paediatrician and from then a lot of tests were done. At one year old Lillie was registered blind and also had to have an MRI where it was picked up her cerebellum and pons were very small and also her head was small.

We were referred to genetics who ran lots of blood tests but didn’t come up with any answers. They then sent bloods to Amsterdam under the DDD study, they still had no answers so sent more to another country where they discovered she has pch type 2.

Lillie is blind, she has uncontrollable epilepsy, microcephaly, hypotonia, and dystonia. She’s also fully tube fed, non-verbal and non-mobile. She has sleep apnoea and is going to be put to sleep so they can investigate. It could be floppy muscles in her throat or something wrong with her voice box which could possibly need a small operation. If none of these she will probably need a tracheostomy. Lillie has been through so much and is still so happy and smiling.



Patterns


1.Esmeralda dancing from lq filesStitcher: Jodie Balaam, Lawshall, England
Received

2.Merete LQ Files Elsa Portrait by MereteStitcher: Sandra, Shefford, England
Received

3. By Merete from LQ files Princess portrait AnnaStitcher: Jan G, Hull, UK
Received

4.LQ Files Princess MinnieStitcher: Nicola, St Albans, UK
Received

5.Disney a punto croce no 52 Fairy Minnie Mouse in purplesStitcher: Kaz Bowen, Wakefield, UK
Received

6.LQ files, by Merete Mickey and friendsStitcher: Helen, Swindon, UK
Received

7.Vervaco Ariel from the Little MermaidStitcher: Gemma.H, Glos, UK
Received

8.By Beth Filmer from LQ files Sisters Forever - Elsa & Anna Stitcher: EE(Beth)Filmer, Adelaide, Australia
Received

9.Close up ariel face Stitcher: Nicola, Elland, UK
Received

10.LQ files OlafStitcher: C McDonald, Altrincham, UK
Received

11.LQ Files by Beth Filmer Kristoff from frozenStitcher: Angie, Belper, UK
Received

12.Label Stitcher: Erin, Neath, Wales
Received


Squares received

Cross stitch square for Lillie-Mae B's quilt
Stitched by: Erin
Submitted: Sep 2022

Cross stitch square for Lillie-Mae B's quilt
Stitched by: Jodie Balaam
Submitted: May 2022

Cross stitch square for Lillie-Mae B's quilt
Stitched by: Sandra
Submitted: May 2022

Cross stitch square for Lillie-Mae B's quilt
Stitched by: Jan G
Submitted: May 2022

Cross stitch square for Lillie-Mae B's quilt
Stitched by: Nicola
Submitted: May 2022

Cross stitch square for Lillie-Mae B's quilt
Stitched by: Kaz Bowen
Submitted: May 2022

Cross stitch square for Lillie-Mae B's quilt
Stitched by: Helen
Submitted: May 2022

Cross stitch square for Lillie-Mae B's quilt
Stitched by: Gemma.H
Submitted: Jul 2022

Cross stitch square for Lillie-Mae B's quilt
Stitched by: EE(Beth)Filmer
Submitted: Jul 2022

Cross stitch square for Lillie-Mae B's quilt
Stitched by: Nicola
Submitted: May 2022

Cross stitch square for Lillie-Mae B's quilt
Stitched by: C McDonald
Submitted: May 2022

Cross stitch square for Lillie-Mae B's quilt
Stitched by: Angie
Submitted: May 2022


Card

Card for Lillie-Mae B
Stitched by: Linda Cropper

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