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LoveQuiltsUK - Lewis W's quilt

Lewis W's quilt    (Quilt currently being assembled)

Born:2009
Illness: Epilepsy, profound learning disability, tube fed, cardiac issues right bundle branch block and prolonged QTS

Theme: Vehicles

Quilt currently being assembled
Photo of Lewis W

Biography

Lewis was born at full term and it was apparent very early on that something was wrong. He didn’t cry or feed after birth and was very bloated and purple. He had his first seizure at 3 hours old which required him to be resuscitated and moved to intensive care where he stayed for 2 weeks. We took him home where he stayed for less than 24 hours before being blue lighted back again, stopping breathing during seizures. This time he was sent to the childrens ward where he stayed for a number of months, he was diagnosed with bilateral temporal lobe epilepsy and in all likelihood was expected to not do very well. We were told to take him home and love him.

Over the following years he spent more time in hospital than he did at home and added to his list of problems constantly. His seizures were uncontrolled and as a result of early seizure activity he had brain damage to add to everything else.

Little did we know what a will to survive he had and he managed to walk by the age of 3 albeit in his own unique way. He is non-verbal and is tube fed. We went down the route of genetic testing and whilst a genetic condition has been identified it is not thought to be the cause of his problems.

During routine testing we found that he had major cardiac issues that put him at high risk of sudden cardiac arrest, something that terrifies me every waking hour.

Lewis has been dealing with issues with his joints since birth. He had absolutely no muscle tone but through relentless work with physio and OT he got some mobility although still uses his wheelchair at all times outdoors. Only last week after seeing consultants after a rapid decline in his ability to walk we were told to expect him to lose the ability altogether in the coming years.



Patterns


1.Lotus 7 from LQUK filesStitcher: Sylvia, Clacton, England
Received

2.Monster Truck by Beth FilmerStitcher: Linda Cropper, Atherstone, England
Received

3.Allura's Australia in cross stitch by Jan Skinner Melbourne tramStitcher: Sally, Hull, UK
Received

4.LQ pattern Mclaren 570 McLaren CarStitcher: Judith Chamberlain, Welwyn Garden City, UK
Received

5.Red sports car Stitcher: Nicola, Elland, UK
Received

6.Cotton Tree studios on Etsy Set of 7 Construction vehicles Stitcher: Pru, Les Adjots, France
Received
https://www.etsy.com/uk/listing/882273397/construc...

7.Cyberstitchers All terrain vehicle (ATV)Stitcher: Kaz Bowen, Wakefield, UK
Received

8.Mary Hickmott Designs on Etsy Red racing cars Stitcher: Heather, Littleborough, England
Received

9.Kit Blue triumph spitfire carStitcher: Alison, South Gloucestershire, UK
Received

10.Blue Scottish train LQ Files blue Scottish trainStitcher: Laura, Thetford, UK
Received

11.LQUK files Cement truckStitcher: Deborah Found-Bloodworth, Uxbridge, Middx, UK
Received

12.Label Stitcher: Anne, Sandefjord, Norway
Received


Squares received

Cross stitch square for Lewis W's quilt
Stitched by: Anne
Submitted: Jul 2022

Cross stitch square for Lewis W's quilt
Stitched by: Sylvia
Submitted: Jul 2022

Cross stitch square for Lewis W's quilt
Stitched by: Linda Cropper
Submitted: Oct 2022

Cross stitch square for Lewis W's quilt
Stitched by: Sally
Submitted: Jul 2022

Cross stitch square for Lewis W's quilt
Stitched by: Judith Chamberlain
Submitted: Jul 2022

Cross stitch square for Lewis W's quilt
Stitched by: Nicola
Submitted: Aug 2022

Cross stitch square for Lewis W's quilt
Stitched by: Pru
Submitted: Jul 2022

Cross stitch square for Lewis W's quilt
Stitched by: Kaz Bowen
Submitted: Jul 2022

Cross stitch square for Lewis W's quilt
Stitched by: Heather
Submitted: Jul 2022

Cross stitch square for Lewis W's quilt
Stitched by: Alison
Submitted: Sep 2022

Cross stitch square for Lewis W's quilt
Stitched by: Laura
Submitted: Aug 2022

Cross stitch square for Lewis W's quilt
Stitched by: Deborah Found-Bloodworth
Submitted: Aug 2022


Card

Card for Lewis W
Stitched by: Nicola Bailey

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