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LoveQuiltsUK - Jamie's quilt

Jamie's quilt    (Quilt Closed)

Born:2009
Illness: Bohring-Opitz Syndrome

Theme: Stars & Rainbows

Date opened: 20th Jul 2022
Date closed: 23rd Jul 2022
Deadline: 26th Nov 2022

Photo of Jamie

Theme details

Stars & Rainbows - If we can mix in some planes and rockets that would be great (they do not have to be on every square). Please try to blend eg colourful rockets with stars rather than a realistic Spitfire with a rainbow (which would look a bit strange!) Actual rainbows rather than rainbow-coloured items please



Child Interests

Jamie loves all bright colours, especially blue & green. He LOVES rainbows and stars & anything to do with aviation, particularly airplanes and rockets!


Biography

Jamie was born at term following a normal pregnancy. He didn't look like I'd imagined, he was A LOT smaller than my first born & his immediate oxygen requirements gave cause for concern. He didn't come home for 2 weeks while we tried to establish a feeding regime and feeding difficulties continued in the following months at home until he had to be taken back into hospital for an NG tube; he was failing to thrive.

Feeding issues continued for many years and several different means were tried until a GJ tube & fundoplication were were done. Jamie has had many hospital admissions, particularly in the first 6 or 7 years of his life. Besides surgery to place his feeding tubes, he has had his tonsils & adenoids removed and open heart surgery to repair an ASD. Serious infections have also led to hospital admissions, 2 of which resulted in respiratory arrest and another (when he had sepsis) leading to full cardiorespiratory arrest. At this point Jamie went blind, deaf & his liver failed - it is beyond miraculous that he survived!

There are roughly just 250 children worldwide with a diagnosis of Bohring-Opitz Syndrome (BOS); Jamie is the only one in Ireland (North & South) but true friendships have been formed online with other BOS families.

Jamie can't walk or talk, he has epilepsy, scoliosis, congenital heart disease, dystonia, compromised hearing & vision, obstructive sleep apnoea, gastroesophageal reflux disease & he's the size of a toddler. He is the strongest, bravest, most loving little boy. He goes to school every day and to NI Children's Hospice for respite. We love him beyond measure & we wouldn't change him for the world x



Patterns


1.Magic wand of stars from climbing goat designsStitcher: Jodie Balaam, Lawshall, England
Received

2.Climbing Goat Designs Star of Rainbow StarsStitcher: Nicola, St Albans, UK
Received

3.DMC Star chaserStitcher: Eileen, Newcastle, UK
In Progress

4.Quote when it rains look for rainbows, when it's dark look for stars. Own design.Stitcher: Emma Robson, Doncaster, England
In Progress

5.Ann Logan, cross-stitch-pattern.net Colourful rocket. I will add lots of starsStitcher: Ann, Billericay, UK
Received

6.LQ files I can sing a rainbowStitcher: Kaz Bowen, Wakefield, UK
Received

7.Stitchingland Airplane with stars or rainbow Stitcher: C McDonald, Altrincham, UK
Received
https://stitchingland.store/products/aeroplane-cro...

8.Climbing goats design Rainbow heart ( I can fill in the heart if required and add stars)Stitcher: Sharon, Doncaster, UK
Received

9.LQ Files Spaceship blasting offStitcher: Elaine Dixon, Athens, Greece
Received

10.Quote: “Beautiful like a rainbow” inside a rainbow-coloured circleStitcher: Emma Swift, Aberdeen, UK
In Progress

11.

12.Label Stitcher: Pat Brown, Warminster, England
Received


Squares received

Cross stitch square for Jamie's quilt
Stitched by: Pat Brown
Submitted: Sep 2022

Cross stitch square for Jamie's quilt
Stitched by: Jodie Balaam
Submitted: Jul 2022

Cross stitch square for Jamie's quilt
Stitched by: Nicola
Submitted: Jul 2022

Cross stitch square for Jamie's quilt
Stitched by: Ann
Submitted: Aug 2022

Cross stitch square for Jamie's quilt
Stitched by: Kaz Bowen
Submitted: Aug 2022

Cross stitch square for Jamie's quilt
Stitched by: C McDonald
Submitted: Sep 2022

Cross stitch square for Jamie's quilt
Stitched by: Sharon
Submitted: Sep 2022

Cross stitch square for Jamie's quilt
Stitched by: Elaine Dixon
Submitted: Jul 2022


Card

Card for Jamie
Stitched by: Marilyn Foyle

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