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LoveQuiltsUK - Reuben C's quilt

Reuben C's quilt    (Quilt Closed)

Born:2009
Illness: Autism, severe developmental regression, non-mobile.

Theme: Monkeys and cartoon characters

Date opened: 27th Jul 2022
Date closed: 28th Jul 2022
Deadline: 26th Nov 2022

Photo of Reuben C

Theme details

Monkeys and cartoon characters - Cartoon characters are specifically Mr Men and the Gruffalo



Child Interests

Reuben loves pink and purple and all bright colours.
He loves his three dogs Tobias, Stella and Frank. He also loves Mr Men and story book characters such as The Gruffalo etc Mr Bean is also a firm favourite along with animals. He also has guinea pigs, rabbits, budgies and a cockatiel, he is a huge fan of monkeys!


Biography

Reuben is a lovely 12 year old boy who lives with his mum and many pets! No concerns during pregnancy and all went smoothly apart from mum having severe sickness and being hospitalised a lot which he was induced early for.

Reuben was always an unsettled baby, he needed deep pressure on him all the time and constantly to be moved around. He never slept for longer than 30 mins at a time and became really stressed when he woke up. Let’s say he loved to keep us all on our toes entertaining him!

Reuben’s development in terms of moving around was on time but his social and communication was very delayed. He didn’t smile, didn’t enjoy interaction with others, was very fixated and appeared to be in his own world. He never babbled or responded to his name. Just before he was two he woke up saying some object words ball, car and dog although these were not used in context. A few months later Reuben’s behaviour became erratic, he would spin round and round, not like any contact with others and his words and sounds disappeared. He received years of speech and language and his speech eventually came back. He was diagnosed with autism around the age of 5 although this was identified from a much younger age. He made progress at school although had difficulties with social communication and interaction.

Reuben from the age of 6 became more clumsy and started to lose skills. This was really slow at first and almost unnoticeable. They have intensified over time and he is now non-verbal, incontinent, non-mobile, has some tightening in his legs, can struggle to support his own head, repetitive hand movements and in his own little world. He can have episodes of zoning out where he is very tired afterwards. He is undergoing further testing genetically to try and find a cause. Reuben now has a gastrostomy as he has been assessed as having an unsafe swallow. He is currently on continuous feeding as he has lost weight a lot recently, possibly due to movements.

Reuben takes medication multiple times a day to help with movements. He still struggles with sleep and despite medication has a max of two hours broken sleep. He has recently been at a local special school and made relationships with some staff members which is lovely to see.

Reuben has daily physio to help with his movements. Reuben is working on object of reference for communication which will be amazing if we can get some communication back. He finds lots of things funny and will laugh along to himself especially over his dogs. Reuben needs full adult support and assistance, he requires equipment to help position him and needs an adult to do all self care etc.



Patterns


1.Stitcher: Deborah, Leeds, UK
Received

2.Stitcher: Deborah, Leeds, UK
Received

3.Stitcher: Jan S, Enid, Oklahoma, USA
Received

4.Stitcher: Jodie Balaam, Lawshall, England
Received

5.Stitcher: Leanne Malcolmson, Romsey, UK
Received

6.Stitcher: J Brotherton, Downham Market, UK
Received

7.Stitcher: J Brotherton, Downham Market, UK
Received

8.Endangered Young Uns - chimpanzeesStitcher: Leanda Vickers, Oldham , England
Received

9.Protected babies by stoney creek. MonkeyStitcher: Miss Debbie Elkington, Boston, Lincs, UK
Received

10.Endangered Young’uns OrangutansStitcher: Sandra, Shefford, England
Received

11.Endangered Younguns Golden lion tamarin monkeysStitcher: Jan G, Hull, UK
Received

12.Label Stitcher: Elaine Dixon, Athens, Greece
In Progress


Squares received

Cross stitch square for Reuben C's quilt
Stitched by: Deborah
Submitted: Sep 2018

Cross stitch square for Reuben C's quilt
Stitched by: Deborah
Submitted: Oct 2020

Cross stitch square for Reuben C's quilt
Stitched by: Jan S
Submitted: Nov 2021

Cross stitch square for Reuben C's quilt
Stitched by: Jodie Balaam
Submitted: Jan 2022

Cross stitch square for Reuben C's quilt
Stitched by: Leanne Malcolmson
Submitted: Mar 2022

Cross stitch square for Reuben C's quilt
Stitched by: J Brotherton
Submitted: Jun 2022

Cross stitch square for Reuben C's quilt
Stitched by: J Brotherton
Submitted: Jun 2022

Cross stitch square for Reuben C's quilt
Stitched by: Leanda Vickers
Submitted: Aug 2022

Cross stitch square for Reuben C's quilt
Stitched by: Miss Debbie Elkington
Submitted: Oct 2022

Cross stitch square for Reuben C's quilt
Stitched by: Sandra
Submitted: Aug 2022

Cross stitch square for Reuben C's quilt
Stitched by: Jan G
Submitted: Sep 2022


Card

Card for Reuben C
Stitched by: Anne Berg Gjolberg

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