Henry was diagnosed with Cystic fibrosis shortly after birth, it was a very scary time for me and my partner as parents as we were unaware about being carriers for this condition. He was very unwell as a baby and struggled to gain weight due to the symptoms of his disease, which targets the lungs and digestive system. Cystic fibrosis causes a build up of sticky mucus, meaning Henry has to have lots of hospital appts, blood tests, and regular antibiotics when he is unwell.
We have had a few hospital stays with Henry that have been challenging as he is still so little and doesn’t understand yet what his CF means - that will be a conversation as he grows up! Henry takes regular medication daily, physio twice a day to exercise his lungs and help clear mucus from his chest, and takes all of this in his stride!