Milo is absolutely over the moon with his quilt. He's had a really tough time recently and been really struggling with his emotions, but he pointed out that this quilt was so full of love that he needed to use it whenever he was feeling angry and whenever he needs his wheelchair. Thank you so, so much. Please always remember how much you change lives xxx
Milo struggled from birth with feeding. I always felt something was wrong but my concerns were brushed off as a nervous first time parent. We started seeing a Paediatrician as he had bouts of screaming and sickness and it was only when he was 3 he could verbalise "dizzy". These vertigo attacks can be terrifying for him. He sometimes loses the use of his limbs and during severe attacks throws up every time he moves his head.
His chromosome deletion was found at age 5 or 6 and certainly made sense of some things. We realised why he struggled to feed at birth, his behavioural issues, autism and learning disability all come from that deletion.
He is, however, amazing at gaining access through parental controls. He certainly keeps us on our toes and even his dad (who works in I.T) struggles to keep up with him.
Milo struggles to access the world. We had to take him out of school as it was breaking him, and in turn us as a family. He uses a wheelchair when out and about as his weak muscles and sensory overload make it impossible to go to places that are unfamiliar.
Once you get to know Milo then he's the funniest, wittiest boy ever, I just wish life was a little easier for him!