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LoveQuiltsUK - Reuben S's quilt

Reuben S's quilt    (Quilt Closed)

Illness: Pompe disease

Theme: Constellations etc

Date opened: 29th Oct 2022
Date closed: 6th Nov 2022
Deadline: 26th Feb 2023

Photo of Reuben S

Theme details

Constellations etc - Constellations - all, but especially Leo as that is his star sign. Leo star sign symbol. A few planets are ok, please keep to the colours dark grey, light grey, light blue, dark blue, red and white as far as possible

Child Interests

Dark grey, light grey, light blue, dark blue, red and white.
Reuben enjoys arts and crafts, being outdoors in nature, films and television, stars and planets.


Reuben was born via a planned caesarian section after a relatively normal pregnancy.He struggled to breast feed, often falling asleep and disliking loud noises. He didn't reach his milestones as his other two siblings had. Health visitors and one GP didn't take my concerns seriously.

I was referred by one GP but then dismissed in A&E. He was looking worse and getting thinner and at the next visit the consultant discovered he was in heart failure and close to death. We were rushed to Glenfield and after heart medication and 6 weeks of tests he was diagnosed with the rare metabolic Pompe disease.

From here it was a rollercoaster ride. He started a drug infusion therapy treatment which although it kept him alive didn't work as well as hoped.
He contracted pneumonia and ended up in Birmingham Children's Hospital and had to have a tracheostomy and then eventually was ventilated following an operation for a gastrostomy button.

He spent almost 3 years in Glenfield, Birmingham, Queens and Derby hospitals before coming home after having to find suitable housing with a package of care to support us at home.

We have had many crises with his health but despite this he is a very strong, brave boy ( 6ft 2") who although non-verbal communicates with his thumbs. He attends a special needs school three days a week and really enjoys interacting with the other children. He enjoys going out, cuddles, massages and watching television.


1.Climbing goat designs Patterned SaturnStitcher: Miss Debbie Elkington, Boston, Lincs, UK
In Progress

2.Pegasus constellation off etsy in favourite coloursStitcher: Gemma Boreham, Suffolk, UK

3.Climbing Goat. Leo pattern Leo the lion with skyline and shyStitcher: Jeanne, Pennsylvania, USA
In Progress
climbing goat

4.Nebula by London Cross Stitch ClubStitcher: Lorna Simpson, Southampton, UK
In Progress

5.The World of Cross stitching Neptune and UranusStitcher: Marie, Yeovil, UK
In Progress

6.Leo floral constellation with roses in place of starsStitcher: Emma Swift, Aberdeen, UK
In Progress

7.Https:// Leo astrology signStitcher: Lindsay, Northwich, UK
In Progress

8.Cross Stitching Lovers (etsy) Leo star sign,Lion design with star patternStitcher: Julie, Anglesey, Wales
In Progress

9.American pattern Solar systemStitcher: Moira Anne Jeffcoat, Birmingham, England
In Progress

10.Own design Ursa majorStitcher: Ellie, London, UK
In Progress

11.Earth, mars and Pluto, world of crossstitching Aprl 2022 Issue 318Stitcher: Anne Hanley, Edinburgh, Scotland
In Progress

12.Label Stitcher: Emma Robson, Doncaster, England
In Progress

Squares received

Cross stitch square for Reuben S's quilt
Stitched by: Gemma Boreham
Submitted: Nov 2022

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