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LoveQuiltsUK - Asharla A's quilt

Asharla A's quilt    (Quilt Closed)

Born:2011
Illness: SMC1A cornelia de large syndrome

Theme: Flowers and Feathers

Date opened: 14th Dec 2022
Date closed: 18th Dec 2022
Deadline: 26th Apr 2023

Photo of Asharla A

Child Interests

Asharla's favourite colour is yellow. Her bedroom is yellow as it’s her happy colour. She also likes bits of pink and purple.

She is a proper girly girl, loving shoes, bags, flowers and butterflies. She is also a Disney fan, enjoying Moana and Frozen.


Biography

Asharla was born without issues and although slightly delayed in her 1st milestones professionals were not concerned. At 13 months old Asharla had her 1st seizures which led to her having over 20 seizures within 24 hours.


Asharla spent a couple of months in hospital recovering and re learning lost skills. This then prompted genetic testing which took 8 years to find the diagnosis. Asharla was then found to have an inactive SMC1A gene. This leaves her completely dependent on adults for all aspects of care. She is non verbal and not able to weight bear, therefore she’s a full time wheelchair user which in turn has made her bones brittle with tight and low muscle tone causing fractures and severe cramps in her legs.


Despite all of this Asharla is a happy girl. Her smile lights up a room. She is so strong and faces everything with her smile .



Patterns


1.OhMyStitchesShop on Etsy. Heart of sunflowers.Stitcher: Nicky, Mytchett, UK
In Progress

2.Girl with flower dressStitcher: Helen Cheape, Sunderland, UK
In Progress
https://www.etsy.com/uk/listing/840789410/floral-g...

3.Etsy StitchBySoul Dreamcatcher with Moon and FeathersStitcher: Alison Forsyth, Aberdeen , UK
In Progress
www.etsy.com/uk/listing/1264767620/dreamcatcher-pd...

4.DMcross stitch Yellow rose Stitcher: Paula Dewar, Glasgow, Scotland
In Progress

5. Folklore Cross Stitch Pattern, Boho Feather Patterns from Etsy Three feathers, boho patternStitcher: Marion, Coventry, UK
In Progress
https://www.etsy.com/uk/listing/1292798473/the-fea...

6.Etsy design by cross stitch tower. Wreath of feathers and words It's a good day to be happy.Stitcher: Moira Anne Jeffcoat, Birmingham, England
In Progress

7.Yellow tulipsStitcher: Ellie, London, UK
In Progress

8.Alice Alan on Etsy Hibiscus flowers will change colour to yellow flowersStitcher: Jenny, Rushden, UK
Received

9.Feathers - modify to fit max sizeStitcher: Angela, New Zealand
In Progress
https://www.etsy.com/uk/listing/606651750/feather-...

10.Three feathers in favourite colours of etsyStitcher: Gemma Boreham, Suffolk, UK
In Progress

11.

12.Label Stitcher: Jannine Hall, Stourbridge, England
In Progress


Squares received

Cross stitch square for Asharla A's quilt
Stitched by: Jenny
Submitted: Jan 2023



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