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LoveQuiltsUK - Jake B's quilt

Jake B's quilt    (Quilt Closed)

Born:2016
Illness: Genetic disorder SEPSECs causing PCH2D. Degenerative neurological disorder.

Theme: Dragonflies

Date opened: 17th Dec 2022
Date closed: 27th Jan 2023
Deadline: 26th Apr 2023

Photo of Jake B

Child Interests

Jake loves things that make a sudden bang. His sister is the best at making him laugh. He loves messy play and water. Jake is visually impaired so doesn't have a favourite colour but his sister says she thinks it would be blue. The symbol for his disorder is a dragonfly as this is the shape children's brains make when they atrophy so we have dragonflies everywhere.


Biography

Jake is a 6 year old boy. We noticed at around 6 weeks old something was not quite right. It started off with visual issues. We learnt at 8 months old after lots of tests that what we were looking at was neurological. After a second brain MRI at 3 years old, which showed parts of his brain had disappeared and linking these results with a genetics team we were able to find his genetic mutation within the SEPSECs gene. It is extremely rare. It is degenerative so his condition causes him to lose motor function. He lost the ability to eat orally. He can no longer do anything for himself.


But the one thing that remains strong are his smiles.

Anyone who is lucky enough to meet him, feels his happiness radiate. He does not let the struggles and declines that come with his disorder stop him from enjoying life. His life will be small but it will be big in Love. He has a sister who is called Aneya who is 9 and she is his best friend.



Patterns


1.Dragonfly by Ann loganberry cross stitch pattern netStitcher: Gemma Boreham, Suffolk, UK
In Progress

2.Etsy Pattern Stitch Studio Dragonfly cross-stitch pattern in green gradients cross-stitch pattern - dragonfly cross-stitch pattern Dragonfly in green gradient. Will do it in blue variegated thread.Stitcher: Gabriele Pearson, Cromarty, UK
In Progress

3.Cross stitch wonders/lickity stitch Dragonfly 2Stitcher: Jenny Elkington, Boston, UK
Received

4.Design by TinyHouseStitchery on Etsy. Will do on 16ct to make pattern fit Blue dragonflyStitcher: Karen Stephenson, Cambridgeshire, UK
In Progress

5.Cross Stitch Wonders - Jacobean Dragonflies no. 5Stitcher: Leanda Vickers, Oldham , England
Received

6.Awesome Pattern Studio Pattern #113 Mandala DragonflyStitcher: Jill Smith, Taunton, England
In Progress

7.World in stitches Dragonfly and flowers in blues and lilacsStitcher: C McDonald, Altrincham, UK
In Progress
https://www.theworldinstitches.co.uk/blogs/blog/fr...

8.Happy Little Mouse on Etsy. Blue & green dragonfly.Stitcher: Nicky, Mytchett, UK
In Progress

9.Own design Southern migrant hawker (=blue) dragonfly landing on a plantStitcher: Elizabeth, Shipley, UK
In Progress

10.Etsy seller Alice Stitch Shop. Dragonfly in Rainbow colours to be stitched on 18ct. Stitcher: Sharon, Kenilworth, UK
In Progress
https://www.etsy.com/uk/listing/1318883377/cross-s...

11.Joan Elliott designs DragonfliesStitcher: EE(Beth)Filmer, Adelaide, Australia
In Progress

12.Label Stitcher: Heather, Littleborough, England
Received


Squares received

Cross stitch square for Jake B's quilt
Stitched by: Heather
Submitted: Jan 2023

Cross stitch square for Jake B's quilt
Stitched by: Jenny Elkington
Submitted: Jan 2023

Cross stitch square for Jake B's quilt
Stitched by: Leanda Vickers
Submitted: Jan 2023



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