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LoveQuiltsUK - Liam F's quilt

Liam F's quilt    (Quilt Closed)

Born:2004
Illness: Sox 2 Syndrome

Theme: Music and musical instruments

Date opened: 17th Dec 2022
Date closed: 29th Dec 2022
Deadline: 26th Apr 2023

Photo of Liam F

Theme details

Music and musical instruments - Colourful please due to sight problems



Child Interests

Liam has no favourite colour as he is blind. No black please. The more colourful the better. Liam’s greatest love after his family is music. He listens to all varieties of music and also loves playing musical instruments. The louder the better.


Biography

Liam was born in 2004. As soon as he was born we knew something was wrong with him. He couldn't open his eyes and they looked very sunken. He failed hearing tests and didn't cry. At 3 weeks old and after numerous tests he was put under his 1st general anaesthetic and they found he had no eyeballs. His eyelids were also fused together. This started our numerous, often weekly visits to Moorfields hospital in London, to try and construct eye sockets to enable him to have false eyes. We were told that without eyes his mid range of his face would not grow and there was a chance it could collapse and affect his airways. He underwent numerous operations, in excess of 20+. This involved shaving out the inside of his bottom lip to line the eye sockets. Balloons were inserted to try and stretch the area. Everything that was put in the socket was rejected.

He was not meeting his milestones and as time went on the medical picture just got worse. At 2 years old he had his 1st seizure and ended up in resus as he went into respiratory arrest. At the age of 5 his seizures were really bad and his future did not look great. We decided to stop all the constructive work on his eyes as this became less important.


We have since decided on no future interventions medically unless it is for quality of life. He has been poked and prodded for his whole life which isn't fair on him. He attends a special needs post 16 unit. He has had a lot of challenges in his life and continues to do so, but he is the most fun, loving and very rewarding young man and we are very proud of him.



Patterns


1.Climbing goats design different musical instrument silhouette will do in bright colours cello flute guitarStitcher: Gemma Boreham, Suffolk, UK
In Progress

2.Climbing goat Male drummer- can change colour of drummer figureStitcher: C McDonald, Altrincham, UK
In Progress
https://www.climbinggoat.co.uk/products/drummer-cr...

3.Jazz musicians by climbing goat designs in bright coloursStitcher: Jodie Balaam, Lawshall, England
Received

4.Climbing Goat Designs Music Notes Heart (larger version)Stitcher: Eileen, Newcastle, UK
In Progress

5.Old copy of WOXS Rock guitarist silhouette with musical score, notes etc - will change the colour from blackStitcher: Heather, Littleborough, England
Received

6.Cross-stitching 101 on Etsy Violin with colourful music notesStitcher: Erin, Neath, Wales
In Progress

7.Cross stitch by Donna on Etsy 4 large musical notes, multicoloured.Stitcher: Kelli, Neath, Wales
In Progress

8.Heart of Music by Climbing Goats DesignStitcher: Pippa, Surrey, UK
Received

9.Musical notes https://www.braceletbook.com/variations/alpha/105173/Stitcher: Emma, Crediton, UK
Received
https://www.braceletbook.com/variations/alpha/1051...

10.Electric and acoustic guitars - own designStitcher: Pat Brown, Warminster, England
In Progress

11.From an old cross stitch magazine Selection of different musical instruments as stitched for Connor C in 2016Stitcher: Sandra, Shefford, England
Received

12.Label Stitcher: Sandra, Shefford, England
Received


Squares received

Cross stitch square for Liam F's quilt
Stitched by: Sandra
Submitted: Dec 2022

Cross stitch square for Liam F's quilt
Stitched by: Jodie Balaam
Submitted: Jan 2023

Cross stitch square for Liam F's quilt
Stitched by: Heather
Submitted: Jan 2023

Cross stitch square for Liam F's quilt
Stitched by: Pippa
Submitted: Jan 2023

Cross stitch square for Liam F's quilt
Stitched by: Emma
Submitted: Jan 2023

Cross stitch square for Liam F's quilt
Stitched by: Sandra
Submitted: Jan 2023


Card

Card for Liam F
Stitched by: Marilyn Foyle

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