Abby was born in 2019, 6 weeks early. Initially everything seemed OK but then she started to have seizures and we were told to prepare for the worst. Abby fought back and after a 4 week stay in neonatal, we were allowed to take her home. Before she was discharged, we were informed that she would have cerebral palsy, and it would be very likely that she would never walk, talk, feed herself, may be blind and was at a high risk of developing epilepsy.
Over time, all of these diagnoses came true. The hardest has been the epilepsy – Abby developed focal seizures at 5 months old, and then Infantile Spasms at 8 months, the latter causes brain damage if left untreated. Thankfully, both were successfully brought under control and we all enjoyed 9 months of seizure freedom where Abby thrived. Unfortunately in Spring 2021, the seizures made an appearance again and we have since struggled to bring them under control, having tried 8 drugs and the ketogenic diet.
Despite all this, Abby is a happy, feisty girl who loves listening to music, being outside on her swing and pushed around in her wheelchair, going swimming and trampolining and lots of cuddles.