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LoveQuiltsUK - Amelia P's quilt

Amelia P's quilt    (Quilt currently being assembled)

Born:2021
Illness: Unbalanced Translocation 2p25.3 deletion, MYT1L syndrome, 11q 13.4-25 duplication, AVSD (surgically repaired), left eye congenital glaucoma, peters an

Theme: Baby Animals (kittens, puppies, bunnies)

Quilt currently being assembled
Photo of Amelia P

Theme details

Baby Animals (kittens, puppies, bunnies) - A butterfly and a unicorn on the label. Please keep the animals to cute style



Biography

Amelia is 2 years old and has all the multiple complex diagnoeis that I have written above. Amelia is a very happy and strong little girl that amazes everyone each day with her big smile, giggles and strength with all the obstacles that she has to face.

Amelia is the only one in the world with her genetic sequence; Unbalanced Translocation 2p25.3 deletion and 11q13.4-25 duplication and this has caused her diagnosis list of over 20 life long complexities. Amelia writes her own path.

Amelia had a 3 week NICU stay for hypothermia and feeding issues (NG fed). Then by the age of 5 weeks old she had heart failure and was trialled on heart medication. Amelia at 8 weeks old had left eye Iridectomy surgery to lower her high eye pressure and a small addition pupil (opening to try and allow light in).

Amelia at the age of 3.5 months had complex lung collapses and ICU stays. Then when she was stronger at 4 months she had a long term stay in hospital whilst she waited until 5 months old for her major AVSD and pulmonary artery plication surgery. Sadly her lungs both collapsed during surgery and she had a further stay in PICU/CICU and HDU on CPAP until her lungs were reinflated and she was stronger.

Amelia should never have orally fed due to a late diagnosis of an unsafe swallow and high risk of aspiration at 8.5 months old. As parents we stopped feeding her by bottle before 4 months as she had lots of incidents with severe sickness, choking, needing recovery position and ambulances to A&E and stays at hospital. She then had an NG permanently placed until her Corflo PEG approx 14 months old and has thrived since with her weight and settled on this current prescription milk.

Amelia had a very bad 4 months over last summer with complex colds, viruses and chest infections. Amelia's sleep study showed she needed a CPAP ventilator and we’ve seen a massive improvement in her level of energy and happiness since last September when this was commenced.

Amelia had major hip surgery in January for her right hip dislocation and was hip spica casted for 8 weeks. She had surgery a week ago for her metal work to be removed and a new hip spica, this should be removed in 3 weeks time. Surgeon said Amelia was “the hardest” she’s ever done!

Amelia is known as our “Amazing Amelia” and she is our ray of sunshine.



Patterns


1.Orange Marmalade cat/kitten in bright coloursStitcher: Pru, Les Adjots, France
Received
https://www.etsy.com/listing/1168825922/cross-stit...

2.Bebunni Butterfly (Rabbit with butterflies) by Bothy Thread Stitcher: Val Gilbert, Coningsby , UK
Received

3.Cross Stitch Cuties Kitten sleeping on a cushionStitcher: Pat Brown, Warminster, England
Received

4.WOCS 2017 calendar Wrendale spaniel puppyStitcher: Jill Smith, Taunton, England
Received

5.Disney Cross Stitch magazine Aristocat kitten in a floral shaped heartStitcher: Kerry Brabbs, Rotherham, UK
Received

6.Cross Stitcher Issue 164 Dog, kitten and rabbit by Perfect PetsStitcher: EE(Beth)Filmer, Adelaide, Australia
Received

7.The Stitch Patterns on Etsy Bunny Stitcher: C McDonald, Altrincham, UK
Received
https://www.etsy.com/uk/listing/818586402/bunny-cr...

8.Lq files Cat 3 rainbow colour Stitcher: Laura, Thetford, UK
Received

9.Cat birth sampler from WOCS. 4 kittens with presents, cards, ribbon. Stitcher: Rebecca, Kettering, Northants, UK
Received

10.Etsy Cross Stitch Pattern pdf Cats Kitty Kitten Cute Animal Modern Stitcher: Sharon, Doncaster, UK
Received

11.Stitcher: Leanne Malcolmson, Romsey, UK
Received

12.Label Stitcher: Sarah, St. Albans, UK
Received


Squares received

Cross stitch square for Amelia P's quilt
Stitched by: Sarah
Submitted: Jul 2023

Cross stitch square for Amelia P's quilt
Stitched by: Pru
Submitted: May 2023

Cross stitch square for Amelia P's quilt
Stitched by: Val Gilbert
Submitted: May 2023

Cross stitch square for Amelia P's quilt
Stitched by: Pat Brown
Submitted: Aug 2023

Cross stitch square for Amelia P's quilt
Stitched by: Jill Smith
Submitted: Jul 2023

Cross stitch square for Amelia P's quilt
Stitched by: Kerry Brabbs
Submitted: Aug 2023

Cross stitch square for Amelia P's quilt
Stitched by: EE(Beth)Filmer
Submitted: Jun 2023

Cross stitch square for Amelia P's quilt
Stitched by: C McDonald
Submitted: Jun 2023

Cross stitch square for Amelia P's quilt
Stitched by: Laura
Submitted: Sep 2023

Cross stitch square for Amelia P's quilt
Stitched by: Rebecca
Submitted: Aug 2023

Cross stitch square for Amelia P's quilt
Stitched by: Sharon
Submitted: Jul 2023

Cross stitch square for Amelia P's quilt
Stitched by: Leanne Malcolmson
Submitted: Jul 2023


Card

Card for Amelia P
Stitched by: Marilyn Foyle

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