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LoveQuiltsUK - Harvey D's quilt

Harvey D's quilt    (Quilt currently being assembled)

Born:2011
Illness: Duchenne muscular dystrophy

Theme: Mixture

Quilt currently being assembled
Photo of Harvey D

Theme details

Mixture - Dinosaurs/space/Football (Swansea City) A good mixture please. Disney's Stitch on the label if possible.



Biography

Harvey was born with a life limiting genetic muscle wasting condition. It was a traumatic birth as we almost lost Harvey due to prolapsed cord and had to have an emergency c section as he was suffocating.

We didn't know about Harvey's condition until he turned 4, after years of him not meeting milestones, crawling, choking on foods, not walking. At 15 months he started physiotherapy and still continues to this present day.
When he reached age 3 we pushed for more tests and it was only because of an assessment for autism that made the hospital do a blood test which confirmed his CK levels were not normal and had high liver enzymes, so he had to go through more bloods tests a week later, which showed his CK levels were even higher than the last.

He was then sent to see a neurologist who told us that he may have a terminal muscle wasting condition. He then did more blood tests and sent them to be genetically tested. After 6 months we finally had our fears confirmed.

Harvey fights every day not just with Duchenne as things have become a lot more difficult for him but with being autistic as well. He has deteriorated a lot specially since lockdown, and he doesn't walk much any more because it's too painful for him. His chest muscles are getting weaker. He can't do things children of his age do any more and it's really frustrating for him. He sees other children playing whilst he has to attend all his hospital appointments.



Patterns


1.Stitcher: Kaye S, Bangor, Northern Ireland
Received

2.Climbing Goat Designs Bothy threads football samplerStitcher: Nicola, St Albans, UK
Received

3.Https://www.climbinggoat.co.uk/products/squares-brontosaurus-dinosaur-cross-stitch-pattern?_pos=5&_sid=de5c0c698&_ss=r Brontosaurus using squares to create shapeStitcher: Cairine, Grantown on Spey, UK
Received

4.Craftwithcartwright.com Astronaut from craft with cartwrightStitcher: Emma Bottrell , Par, UK
Received

5.T Rex Climbing Goat Word T Rex through T Rex shapeStitcher: Kaz Bowen, Wakefield, UK
Received

6.LQ files Planets of Solar SystemStitcher: Helen, Swindon, UK
Received

7.Shoot for the moon, Alien Craft, Rocket, planet,telescope Small space designs by Maria DiazStitcher: Jean, Buckinghamshire, England
Received

8.Rocket and earth from dnc free patterns Stitcher: Anne Hanley, Edinburgh, Scotland
Received

9.X Stitch design copyright D Marshall 2008 Swansea City Football Club BadgeStitcher: Karen Hockin, Southampton, England
Received

10.The little stitchery on Etsy T rex in space Stitcher: Alison, South Gloucestershire, UK
Received

11.Stitcher: Lorna Simpson, Southampton, UK
Received

12.Label Stitcher: Jodie Balaam, Lawshall, England
Received


Squares received

Cross stitch square for Harvey D's quilt
Stitched by: Jodie Balaam
Submitted: May 2023

Cross stitch square for Harvey D's quilt
Stitched by: Kaye S
Submitted: May 2022

Cross stitch square for Harvey D's quilt
Stitched by: Nicola
Submitted: Jul 2023

Cross stitch square for Harvey D's quilt
Stitched by: Cairine
Submitted: Sep 2023

Cross stitch square for Harvey D's quilt
Stitched by: Emma Bottrell
Submitted: Jul 2023

Cross stitch square for Harvey D's quilt
Stitched by: Kaz Bowen
Submitted: Jul 2023

Cross stitch square for Harvey D's quilt
Stitched by: Helen
Submitted: Aug 2023

Cross stitch square for Harvey D's quilt
Stitched by: Jean
Submitted: Jun 2023

Cross stitch square for Harvey D's quilt
Stitched by: Anne Hanley
Submitted: Jul 2023

Cross stitch square for Harvey D's quilt
Stitched by: Karen Hockin
Submitted: Jun 2023

Cross stitch square for Harvey D's quilt
Stitched by: Alison
Submitted: Sep 2023

Cross stitch square for Harvey D's quilt
Stitched by: Lorna Simpson
Submitted: Sep 2023


Card

Card for Harvey D
Stitched by: Deborah Desmond Clarke

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