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LoveQuiltsUK - Sienna L's quilt

Sienna L's quilt    (Quilt Closed)

Illness: Neurofibromatosis type 1

Theme: Giraffes

Date opened: 29th Jul 2023
Date closed: 4th Aug 2023
Deadline: 26th Nov 2023

Photo of Sienna L

Theme details

Giraffes - For the label, please stitch her name in purple. Cute or realistic style please (due to autism) [Note: this excludes mandala, outline, geometric or any other abstract-style pattern]

Child Interests

She LOVES purple, and is a massive fan of anything with giraffes!!! She is OBSESSED!!!
She also loves blue and green! And anything soft feeling. She loves dogs and horses and daisies!!


Sienna is an 8 year old girl. She was born with a large jaw and no one knew what was wrong. When she was 3, she had a MRI and it come back that she had a very large plexiform tumour twisted around her jaw nerves. Constant and regular scans were needed but ultimately no treatment was available. This condition is called neurofibromatosis type 1, where tumours grow within the nerves of body and are inoperable.

In late 2021. Sienna started being unwell a lot. An MRI showed she had developed a brain tumour which also causes fluid and pressure on the brain. She underwent emergency surgery to fit a shunt, and we’ve been waiting since for more treatment to be approved.

Sienna recently started a 2 year course of a brand new oral chemotherapy drug to help shrink her brain tumour and plexiform tumour in her cheek.

She also has autism and adhd. She uses a wheelchair sometimes due to muscle weakness in her legs. She is also slowly going blind in one eye due an optic nerve glioma appearing just before Christmas.


1.Luna River Crafts Etsy - Giraffe Stitcher: Laura Brown, Reading, UK

2.Les coeurs d'Isa Tome 2 Giraffe in a heart of leavesStitcher: Jill Smith, Taunton, England
In Progress

3.KitsbySAstitch on Etsy Mother and baby Giraffe - cuteStitcher: Karen Hockin, Southampton, England
In Progress

4.Tall Tales from CrossStitcher Mag Summer 2021-Family of GiraffesStitcher: Sandra Thomas, Sheffield, South Yorkshire England
In Progress

5.Debscrosstitch /Etsy Two giraffes facing each otherStitcher: Ruth Horn, Co Durham, UK
In Progress

6.Stitched before from Italian website Cute giraffeStitcher: Alison, Market Drayton, UK
In Progress

7.Stitch gallery pattern Baby giraffeStitcher: Sharon, Doncaster, UK

8.Pending Stitcher: Kerry Brabbs, Rotherham, UK
In Progress

9.Cross Stitcher Issue 229 Mother Love - Mother & Calf GiraffeStitcher: EE(Beth)Filmer, Adelaide, Australia

10.Giraffe with quote dream bigStitcher: Emma Robson, Doncaster, England

11.Stitcher: Lindsay, Northwich, UK
In Progress

12.Label Stitcher: Sandra, Shefford, England

Squares received

Cross stitch square for Sienna L's quilt
Stitched by: Sandra
Submitted: Aug 2023

Cross stitch square for Sienna L's quilt
Stitched by: Laura Brown
Submitted: Sep 2023

Cross stitch square for Sienna L's quilt
Stitched by: Sharon
Submitted: Sep 2023

Cross stitch square for Sienna L's quilt
Stitched by: EE(Beth)Filmer
Submitted: Sep 2023

Cross stitch square for Sienna L's quilt
Stitched by: Emma Robson
Submitted: Sep 2023


Card for Sienna L
Stitched by: Claire Tobias

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