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LoveQuiltsUK - Harley S's quilt

Harley S's quilt    (Quilt Closed)

Illness: Dandy Walker syndrome and heart disease.

Theme: Superheroes

Date opened: 12th Aug 2023
Date closed: 29th Aug 2023
Deadline: 26th Dec 2023

Photo of Harley S

Theme details

Superheroes - Especially the Avengers eg Hulk, Captain America, Iron Man. Some of his other likes on the label would be nice

Child Interests

Harley’s favourite colours are blue and red.
Harley loves Avengers characters like Spider-Man, Hulk, Captain America and Black Panther.
He also loves monkeys, whales, sharks and space.


Harley was diagnosed with his disability at my 20 week scan. They said he had Dandy Walker syndrome and also 2 holes in his heart and a missing valve. They told me he would have to have open heart surgery and also a hydrocephalus shunt. Harley was born at 35 weeks at Manchester Children’s Hospital and spent the majority of his first few months in the neonatal unit and high dependency. He came home around 3/4 months before which he had open heart surgery and also his shunt operation. He was also fed by ng tube until he got a peg which he no longer has because we managed to get him eating and drinking.

During 8 years now of Harley’s life he’s been in and out of hospital which has a strong effect on Harley’s anxiety which we are getting help with. He has had 27 shunt operations and a cardiac arrest in 2020 due to getting fluid on his lungs and spent a week in intensive care.

Harley’s been through so much but remains a happy smiley caring boy. He’s just got a place in a special needs school too which he is looking forward to starting in September. Harley also has use of a wheelchair as his legs tire really easily. Due to his disability and health he also wears a blue helmet for the protection of his head due to his shunts.

Harley is super brave and he’s a solider in our eyes. We are so proud of him and the strength he has after what he’s been through.


1.Ironman from waist up with nameplate(LQUK Beth Filmer)Stitcher: Sylvia, Clacton, England
In Progress

2.Pattern from your website Captain MarvelStitcher: Lisa, Bristol, UK
In Progress

3.Ilana on LQ Facebook group Nick Fury Agents of ShieldStitcher: Seren Senior, Derby, UK
In Progress

4.Black Panther by Ilana in the LQUK files Black Panther head and shoulders by Ilana in the LQUK filesStitcher: Gill, Taunton, UK
In Progress

5.LQ files Hulk head smashing through wallStitcher: Lorna Simpson, Southampton, UK

6.Spider-Man web swing from LQ filesStitcher: Pru, Les Adjots, France

7.Captain america breaking through wall from lq filesStitcher: Emma Bottrell , Par, UK
In Progress

8.Thor close up from LQ filesStitcher: Heather, Chorley, UK
In Progress

9.LQ files - Deborah Desmond Clarke Spider-Man hanging upside down Stitcher: Clare Brunyee, Rotherham, S.Yorks, UK

10.Iron Man breaking through a wall from LQUK files Stitcher: Karen Burton, Peterborough, UK
In Progress

11.Spiderman close up no backstitchStitcher: Linda Cropper, Atherstone, England
In Progress

12.Label Stitcher: Erin, Neath, Wales
In Progress

Squares received

Cross stitch square for Harley S's quilt
Stitched by: Lorna Simpson
Submitted: Sep 2023

Cross stitch square for Harley S's quilt
Stitched by: Pru
Submitted: Sep 2023

Cross stitch square for Harley S's quilt
Stitched by: Clare Brunyee
Submitted: Aug 2023


Card for Harley S
Stitched by: Sandra.

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