Jaxon K's quilt    (Quilt Closed)

Child Interests

Jaxon’s favourite colour is red. He likes rockets and space as well as watching Fireman Sam.

Biography

After a relatively uncomplicated pregnancy, Jaxon, for reasons still unknown to us, suffered a significant lack of oxygen at birth after a crash caesarean section following a brief period of reduced fetal movement that led to a prolonged resuscitation.

He has spent a significant amount of his life in hospital due to numerous severe chest infections and uncontrolled episodes of dystonia leading him into crisis.

Jaxon was diagnosed with Infantile Spasms in 2019 which then developed into a more complex, difficult to treat Epilepsy. Jaxon can’t walk or talk. He is fully tube fed and is entirely reliant on those around him for every aspect of his care.

This year has been particularly hard as Jaxon spent four months in hospital which included him being intubated in intensive care twice. He became so poorly that doctors were at times, concerned he would not recover but in true Jaxon style he bounced back in his own time and despite the fact he now relies on bipap overnight to support his breathing, he is doing very well and even goes to school.

Patterns

Squares received

Card

Stitched by: Jodie Balaam