Everly's quilt   (Quilt Completed) |
Born: | 2019 |
Illness: | Scimitar syndrome with hyper plastic right lung
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Theme: Farm animals
Quilt delivered: 28th Jul 2024 |
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Thank youThank you so much it’s amazing she finds it very sensory pleasing the colours the textures and pictures it’s beyond fabulous
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Finished photos
Quilted by:
Leanda
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Individual squares
Stitched by:
Angela
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Submitted: Jun 2024
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Stitched by:
Anne
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Submitted: Feb 2024
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Stitched by:
Jan G
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Submitted: May 2024
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Stitched by:
Jan S
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Submitted: May 2024
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Stitched by:
Jodie Balaam
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Submitted: Feb 2024
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Stitched by:
Leanda Vickers
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Submitted: Feb 2024
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Stitched by:
Leanne Malcolmson
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Submitted: Mar 2024
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Stitched by:
Lorna Simpson
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Submitted: Mar 2024
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Stitched by:
Sarah
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Submitted: Mar 2024
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Stitched by:
Sharon
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Submitted: May 2024
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Stitched by:
Sharon Hill
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Submitted: Feb 2024
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Stitched by:
Val Gilbert
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Submitted: Feb 2024
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Card
Stitched by: Hannah Pacifico |
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BiographyEverly is 4 jabs 4 weeks post surgery to untether her spinal cord. She is up and walking now but very unbalanced and falls frequently.
She had her first surgery at a week old for anorectal malformation but still suffers with constipation and is being tested for neuropathic bladder.
She had coil embolization of lateral vessels at 7 weeks old to reduce pulmonary hypertension and to make sure blood flowed correctly through her heart. She suffered with hypertension causing breathlessness and was tired a lot. She has now overcome this and seems to be doing great at present.
She is non verbal and autistic and refuses all clothing so we rely on warm blankets and covers. She is happy at home, twirls around making noises. Her only word is blue which we think is her favourite colour. She is mischievous and tries to sneak off upstairs a lot to be alone but due to falls she is constantly watched. She is medically complex but that doesn’t stop her. She loves books, animals, numbers and colours
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