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LoveQuiltsUK - Carter D's quilt

Carter D's quilt    (Quilt Closed)

Born:2021
Illness: Lennox-Gastaut syndrome

Theme: Specific Animals

Date opened: 9th Dec 2023
Date closed: 30th Dec 2023
Deadline: 26th Apr 2024

Photo of Carter D

Theme details

Specific Animals (Cute or Realistic style) - Lion, Tigers, Sloth, Penguin - a good mix. Cute or realistic style please (rather than abstract/geometry/mandala/outline etc so that he's more likely to recognise)



Child Interests

Carter enjoys music, especially children's concerts. He also enjoys sensory/messy play. He is a water baby and enjoys spending as much time in the bath/pools as possible. Colour wise, due to Carter's visual impairment, he doesn't have a favourite colour as such but is drawn towards bright red and yellow more than others.


Biography

Carter and his twin brother were born in 2021. Both boys spent a total of 48 hours in the NICU. The first 3 months of life there were no signs/symptoms of any disability.

One morning in November we noticed eye rolling and arm/leg jerks. We took Carter to our local hospital straight away. After 48 hours an MRI and EEG later Carter was diagnosed with migrating partial epilepsy of infancy. We spent a total of 2 weeks in hospital, he had a number of tests (blood test, genetic, more EEGs, lumbar puncture) all to find out what has caused this. Still to this day all tests come back as normal, it's only his EEG that shows the abnormal changes. We were discharged on 3 different AED - none of which have stopped the seizures, only reduced.

At home we added a new AED a month later which seemed to make the biggest difference (still not fully controlling but reduced a lot)

At 6 months old, Carter was admitted to hospital again due to bronchiolitis. We spent a total of 8 weeks in hospital. We changed some of his medication, removing and adding to see if we can get a better control over his seizures. We also had more tests done as Carter was struggling to maintain his oxygen levels over night only. We had impedance studies, sleep studies, Xray, ng tubes. It was this stay that gave Carter the diagnosis of sleep apnoea.

On discharge we left with oxygen, CPAP machine, suction machine, feeding machines.

Since then everything has been seemingly calm. We've had the odd night in hospital for either colds, PEG fitting, sleep studies, MRIs etc but no major changes.

As it stands Carter's epilepsy has changed over time and he is diagnosed with Lennox-Gastaut syndrome. He is on 3 AED plus medication for reflux, bowels and secretion.

He has nocturnal CPAP daily and oxygen when required.

Carter is still delayed and unable to sit, crawl, walk etc and relies on others for daily support.

Given all of this Carter is a happy, content, loving child who is loved and adored by so many!



Patterns


1.Penguin from alexia stitches as done before Stitcher: Jodie Balaam, Lawshall, England
Received

2.Endangered Younguns by Gloria and Pat Lion cubsStitcher: Jan G, Hull, UK
Received

3.Cross stitch (may96) Group of penguinsStitcher: Leanne Malcolmson, Romsey, UK
In Progress

4.Etsy- thestitchpatterns Https://www.etsy.com/uk/listing/705880730/lion-cub-cross-stitch-pattern-pdf-safari?ref=yr_purchasesStitcher: Sharon, Doncaster, UK
Received

5.Maria Diaz pattern from Cross Stitcher magazine July 2021 Sloth sampler - 8 sloths on branchesStitcher: Nicola, St Albans, UK
Received

6.Penguin with baby penguin Stitcher: Anne Hanley, Edinburgh, Scotland
Received

7.Tiger Cross-Stitch designs by Ann Logan Cute TigerStitcher: Karen Hockin, Southampton, England
In Progress
https://www.cross-stitch-pattern.net/tiger-37-245-...

8.Mother and baby Sloth on a branch by Fantastic Patterns on Etsy Stitcher: Val Gilbert, Coningsby , UK
Received

9.Used several times before Own design of an adult male lionStitcher: Pat Brown, Warminster, England
Received

10.Quick & Easy Issue 121 Penguin Family - will add snowflakes to enlarge design by Lesley TeareStitcher: EE(Beth)Filmer, Adelaide, Australia
Received

11.The world of cross stitching Charlies ark lionStitcher: Emma Robson, Doncaster, England
Received

12.Label Stitcher: Jeanne, Pennsylvania, USA
Received


Squares received

Cross stitch square for Carter D's quilt
Stitched by: Jeanne
Submitted: Jan 2024

Cross stitch square for Carter D's quilt
Stitched by: Jodie Balaam
Submitted: Dec 2023

Cross stitch square for Carter D's quilt
Stitched by: Jan G
Submitted: Dec 2023

Cross stitch square for Carter D's quilt
Stitched by: Sharon
Submitted: Jan 2024

Cross stitch square for Carter D's quilt
Stitched by: Nicola
Submitted: Jan 2024

Cross stitch square for Carter D's quilt
Stitched by: Anne Hanley
Submitted: Feb 2024

Cross stitch square for Carter D's quilt
Stitched by: Val Gilbert
Submitted: Feb 2024

Cross stitch square for Carter D's quilt
Stitched by: Pat Brown
Submitted: Feb 2024

Cross stitch square for Carter D's quilt
Stitched by: EE(Beth)Filmer
Submitted: Feb 2024

Cross stitch square for Carter D's quilt
Stitched by: Emma Robson
Submitted: Feb 2024


Card

Card for Carter D
Stitched by: Marilyn Foyle

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