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LoveQuiltsUK - Finley A's quilt

Finley A's quilt    (Quilt Closed)

Born:2018
Illness: HIE brain damage, cerebral palsy, Lennox-Gastaut syndrome, global developmental delay

Theme: Mr Tumble

Date opened: 27th Jan 2024
Date closed: 8th Feb 2024
Deadline: 26th May 2024

Photo of Finley A

Theme details

Mr Tumble - Superman on the label please :)



Child Interests

Finley loves Mr Tumble and Tee and Mo the most. He watches them on YouTube. they make him happy and laugh and smile. His favourite colour is blue.


Biography

Finley has cerebral palsy and HIE brain damage from his birth. It was very traumatic and he sustained a brain injury as a result of it. He had a very long resuscitation. He went 22 minutes without a heart beat and had a 45 minutes resuscitation to get him stable. Because of that he also has drug resistant refractory epilepsy called Lennox-Gastaut syndrome.

He can have up to 50 seizures a day, he can’t walk or talk, he’s non verbal, and he has an unsafe swallow so he’s fully tube fed and nil by mouth. His epilepsy has got worse as he’s got older. He has lots of different types of seizures including myoclonic jerks, tonic seizures, absent seizures, also has drop seizures. Many of his conditions are life limiting so he attends our local hospice for respite and is under the symptom management team.

He is often in pain from his dystonia and when his tone changes. He can only communicate this to us by crying and by laughing when he’s happy but life is very difficult for him. One of the main reasons is the drug resistant epilepsy - he’s on so many meds for it but they don’t get on top of the seizures, just give him side effects unfortunately. He often gets aspiration pneumonia from being sick and aspirating it so he’s often in hospital on iv antibiotics to treat it. He also has a lot of daily oral suctioning and we do daily chest physio. We have a plan from the respiratory Physios. We have a lot of unplanned hospital admissions and planned visits - it’s just part of Finley’s life.



Patterns


1.Lord Tumble in a star from LQUK files Stitcher: Sylvia, Clacton, England
In Progress

2.LQ files Mr Tumble star badge by Beth Stitcher: Val Gilbert, Coningsby , UK
In Progress

3.Mr Tumble shine song in LQ filesStitcher: Emma, Crediton, UK
In Progress

4.Mr Tumble Waving by Gemma HarrisStitcher: Pippa, Surrey, UK
In Progress

5.Mr Tumble with a trumpet (own design)Stitcher: Samantha , Bournemouth, England
In Progress

6.My design Mr Tumble with thumb up. top half of torso, no legsStitcher: Julia, Cardiff, United Kingdom
In Progress

7.LQ Files Grandad Tumble in a starStitcher: Julie, Anglesey, Wales
In Progress

8.Grandad Tumble 2 LQ Files Grandad Tumble Stitcher: Judith Chamberlain, Welwyn Garden City, UK
In Progress

9.LQ Files Mr Tumble's bow tieStitcher: Nicola, St Albans, UK
Received

10.Aunty polly in a star from files Stitcher: Gemma McKnight, Southampton , England
In Progress

11.LQ Files Four Mr Tumble Shirts by Beth Filmer Stitcher: EE(Beth)Filmer, Adelaide, Australia
In Progress

12.Label Stitcher: Jan G, Hull, UK
Received


Squares received

Cross stitch square for Finley A's quilt
Stitched by: Jan G
Submitted: Feb 2024

Cross stitch square for Finley A's quilt
Stitched by: Nicola
Submitted: Feb 2024



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