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LoveQuiltsUK - Bella P's quilt

Bella P's quilt    (Quilt Closed)

Illness: DiGeorge Syndrome. Truncus Arteriosus Type 4

Theme: Rainbows

Date opened: 2nd Mar 2024
Date closed: 10th Mar 2024
Deadline: 26th Jun 2024

Photo of Bella P

Theme details

Rainbows - Rainbow scenes or rainbow-coloured objects. NO UNICORNS as she is frightened of them

Perhaps Moana on the label would be nice?

Child Interests

Bright rainbow colours.
Bella loves Cocomelon and Moana.
She is attracted to rainbows, Disney princesses, flowers, butterflies and hearts.


Bella was born with an antenatal diagnosis of DiGeorge Syndrome and congenital heart disease. Being diagnosed antenatally allowed hospital to prepare for her arrival and the days after birth. Bella was transferred to her specialist hospital, Birmingham Childrens, at 1 day old. She underwent the first of many open heart surgeries at 8 days old. Throughout Bella’s life so far she has spent more time in hospital than at home.

She has undergone many admissions for viral infections which wouldn’t have a huge effect on healthy children. For Bella, a viral infection requires treatment with respiratory support. In September 2022, at 7 months old, Bella was admitted to hospital until May 2023. She underwent many procedures, including her second open heart surgery and had 3 admissions to PICU.

Due to Bella spending so much time in hospital she has many delays with her physical development. At 2 years old she cannot stand or walk but she undergoes intense physio to help her get stronger. Her diet is very restricted, she can only eat 4 month stage puree and still relies on formula to help her gain weight. She cannot talk or communicate and is under SALT to help her develop her skills. She is under assessment for an EHCP so she will hopefully be able to start nursery next year with the support of a 1-1.


1.Bothy Watering Hole -; elephant splashing in a puddle with brolly and rainbow.Stitcher: Leanda Vickers, Oldham , England
In Progress

2.Mini Boho Rainbows by Climbing Goat designs Mini RainbowsStitcher: Julie, Anglesey, Wales
In Progress

3.Rainbow Butterfly by Climbing Goat on Etsy Stitcher: Val Gilbert, Coningsby , UK

4.Disney Castle rainbow coloursStitcher: Ellie, London, UK

5.Large heart made up of smaller hearts in fourteen rainbow colours Heart made up of smaller hearts in rainbow coloursStitcher: Gabriele Pearson, Cromarty, UK
In Progress

6.Passion Brode 77 Rainbow sunStitcher: Kaz Bowen, Wakefield, UK
In Progress

7.Dream in colour Lena Lawson needle arts Little girl trying to catch a butterfly wearing a rainbow colour dress with dream in colour written underneath Stitcher: Paula Dewar, Glasgow, Scotland
In Progress

8.Always loved by Climbing Goat DesignsStitcher: Diana Lettice, Spalding, UK
In Progress

9."Beautiful like a rainbow" quote inside a rainbow coloured circle.Stitcher: Angela, New Zealand

10.Climbing Goat Designs Knotted Rainbow Heart Stitcher: EE(Beth)Filmer, Adelaide, Australia

11.Climbing Goat Designs Magical Rainbow hearStitcher: Lorna Simpson, Southampton, UK
In Progress

12.Label Stitcher: Emma Robson, Doncaster, England
In Progress

Squares received

Cross stitch square for Bella P's quilt
Stitched by: Val Gilbert
Submitted: Apr 2024

Cross stitch square for Bella P's quilt
Stitched by: Ellie
Submitted: Mar 2024

Cross stitch square for Bella P's quilt
Stitched by: Angela
Submitted: Apr 2024

Cross stitch square for Bella P's quilt
Stitched by: EE(Beth)Filmer
Submitted: Mar 2024


Card for Bella P
Stitched by: Marilyn Foyle

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