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LoveQuiltsUK - Hayden W's quilt

Hayden W's quilt    (Quilt currently being assembled)

Born:2008
Illness: Sotos syndrome

Theme: Disney - specific

Quilt currently being assembled
Photo of Hayden W

Theme details

Disney - specific - Lion King, Jungle Book And Toy Story. If we have a legal Fireman Sam pattern, it might be nice to put that on the label



Biography

Hayden was born as a twin delivery and he was twin number 1. He was taken to special care as he was unable to feed and had an infection. He then had jaundice for 6 weeks and spent his first Christmas in hospital receiving therapy, his twin had no complications.

Hayden then had a difficult few years. He had many feeding complications and suffered with severe gastro oesophageal reflux disease which caused many infections and phnemonia. He was referred to Addenbrookes Hospital to manage his care. He also had extremely low body tone and was unable to meet milestones.

He underwent countless surgeries including a big operation called a Nissen fundoplication to tie his stomach off and was tube fed. As a complication of the operation his stomach stopped processing and he was unable to absorb through his stomach. He spent weeks in hospital on tpn feeding and eventually had a feed line through his bowel. We had to drip feed into his bowel. Hayden also had severe learning delay.
We were referred to a genetics team and they took many photos and bloods. We waited 10 months for the results and two days before his birthday we received a call to say Hayden had a mutation on his nsd1 gene and a formal diagnosis of Sotos syndrome was made. The next few years were spent in and out of Addenbrookes having countless surgeries.

Hayden has always attended a special school. He absolutely loves school and everyone who meets him says he has the most infectious smile. He uses a wheelchair to help him access the world due to his lack of tone and ability to walk. He has a specialist lycra body suit that he has to wear all day to help his body tone and also has his legs splinted. Despite all his struggles Hayden has a huge zest for life! His school he attends is simply wonderful with him and they take him on lots of trips.



Patterns


1.Beth filmer LQ files Alien from toy storyStitcher: Miss Debbie Elkington, Boston, Lincs, UK
Received

2.LQ files Woody and Buzz by Merete LangsethStitcher: Rosemary Binnie, Macclesfield, UK
Received

3.Designer stitches booklet from world of cross stitching Jungle book - 4 characters in squares - baloo, king Louie, kaa and baby elephant Stitcher: Nicola Hargreaves, Barnsley , UK
Received

4.Designer stitches kit Mowgli and Baloo dancing, with Bagheera watching from a tree branchStitcher: Samantha , Bournemouth, England
Received

5.Mr potato head Stitcher: Nicola, Elland (Hanley), UK
Received

6.Disney a Punto Croce Baby Baloo the bear from Jungle Book splashing in waterStitcher: Jan S, Enid, Oklahoma, USA
Received

7.LQ files Young Simba.Stitcher: Heather C, London, UK
Received

8.LQ files Slinky dogStitcher: Lorna Simpson, Southampton, UK
Received

9.Semco Designs Woody, Buzz, Jesse, Bullseye and RexStitcher: EE(Beth)Filmer, Adelaide, Australia
Received

10.Timon by Jodie from filesStitcher: Gail, Lochgelly, Scotland
Received

11.Stitcher: Nicola, St Albans, UK
Received

12.Label Stitcher: Kelli, Neath, Wales
Received


Squares received

Cross stitch square for Hayden W's quilt
Stitched by: Kelli
Submitted: Oct 2024

Cross stitch square for Hayden W's quilt
Stitched by: Miss Debbie Elkington
Submitted: Jun 2024

Cross stitch square for Hayden W's quilt
Stitched by: Rosemary Binnie
Submitted: Jul 2024

Cross stitch square for Hayden W's quilt
Stitched by: Nicola Hargreaves
Submitted: Jul 2024

Cross stitch square for Hayden W's quilt
Stitched by: Samantha
Submitted: Sep 2024

Cross stitch square for Hayden W's quilt
Stitched by: Nicola
Submitted: Jul 2024

Cross stitch square for Hayden W's quilt
Stitched by: Jan S
Submitted: Sep 2024

Cross stitch square for Hayden W's quilt
Stitched by: Heather C
Submitted: Sep 2024

Cross stitch square for Hayden W's quilt
Stitched by: Lorna Simpson
Submitted: Aug 2024

Cross stitch square for Hayden W's quilt
Stitched by: EE(Beth)Filmer
Submitted: Jun 2024

Cross stitch square for Hayden W's quilt
Stitched by: Gail
Submitted: Sep 2024

Cross stitch square for Hayden W's quilt
Stitched by: Nicola
Submitted: Aug 2024


Card

Card for Hayden W
Stitched by: Sandra *

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