Thank youYOU ARE AMAZING!
Totally amazing.
Digby has just received his quilt, it is stunning.
He loves it and has already got it on his bed.
I don’t feel saying ‘Thank You’ even comes close to how we are feeling right now.
Digby is fascinated with the detail, he is in awe at how perfectly him it is.
Your team of Angels have encapsulated him so well in their artwork.
Every stitch is like a piece of him, it is beyond wonderful and perfectly Digby.
This is a masterpiece that in time will hold a lot of memories and it will be cherished forever.
To each and every stitcher involved we are indebted to you and just want to explain how much this means.
You have made Digby, and us, so very happy.
To be honest we are all a little shell shocked at how much time, love, care and work will have been dedicated to Digby whilst making this.
Thank you again, you are all absolutely phenomenal, so talented and so generous!
I have attached a photo of Digby with his quilt that I hope may be able to share with the artists who worked on his quilt.
Take care, best wishes and another thank you! X
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BiographyDigby was tested aged 2 for the cureless and evil illness Duchenne Muscular Dystrophy after an older sister was diagnosed as a carrier of the condition. Until then we had noticed that his physical performance was slow and even joked about his cute waddle and other mannerisms.
Digby’s diagnosis was crushing. Our beautiful smiley 2 year old son was given a devastating prognosis. His life expectancy was late teens to early 20’s, non ambulant by 10 and slow paralysis on body limbs and organs would cause a shortened life.
As soon as the official diagnosis was shared, Digby, just 2, was fortuitously enrolled on a clinical trial at Great Ormond Street Hospital. This involved weekly infusions, various operations for port catheter device and muscle biopsies.
7 years later the living legend that is Digby still receives a weekly infusion at GOSH. In covid times dosing continued but was administered at home via a home nursing service and drugs couriered from GOSH. This trial will not save Digby or cure DMD but his hard work will make future generations potentially have a fuller future.
To this day dosing continues and our hero warrior fights the good fight.
Digby has a wheelchair but still has the luxury mainly of choosing when he needs it. With house adaptions he has a through floor lift which allows him to remain in a bedroom upstairs with his family. Every day is a new day. Whist it brings new joy and adventures, it also delivers new fears and worries.
The only thing I can say about everything, with absolute certainty, is that Digby is the best boy, the greatest showman, a born entertainer. His heart is huge and he exudes joy. A true warrior and an absolutely wonderful son.
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