Harriet W's quilt (Quilt Coming Soon) |
| Born: | 5.22 |
| Illness: | Rhabdomyosarcoma
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Theme: Hearts, rainbows and fish
Quilt will open soon, keep checking back! |
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Theme detailsHearts, rainbows and fish - Actual rainbows rather than rainbow-colours objects (unless they are hearts or fish) Her favourite colour is red
Spiderman on the label please, especially the one from Spiderman and his amazing friends. If we can squeeze Mario on there too, great (legal patterns please)
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Child InterestsHarriet loves Spidey and his amazing friends, Bluey and Lego ninjas. She is obsessed with the colour red. She loves singing and dancing. Especially to Taylor Swift. She also loves playing Rosalina on Mario kart.
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Biography
After failed GP appointments, 2 A+E visits, hospital admissions, Ultra sounds, CT and MRI scans we were told Harriet had Cancer. No one knew what type but all they knew was it was fast growing. We had phone calls from Southampton to say come now. Biopsies taken, central line fitted and emergency chemo began. Then we were told it was Very High Risk Rhabdomyosarcoma. The fight began.
Harriet has been such a fighter throughout. 9 rounds of chemo. 28 rounds of Radiotherapy which broke her and now 12 to 24months chemo maintenance. This involves us giving chemo everyday and IV chemo every other week in Hospital.
Life will never be the same. They can't remove the tumour. She'll need 3 monthly MRIs for 5yrs!
QA and Southampton have been amazing with Harriet's treatment. We have met some amazing staff and families. No child should have to go through these treatments.
It's hit us all so hard but we try to rebuild our lives and learn to live and make the most of everyday.
Edith has continued to make us so proud too. No sibling should have to see what she's seen.
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