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LoveQuiltsUK - Stevie L's quilt

Stevie L's quilt    (Quilt currently being assembled)

Born:March 2011
Illness: Chromosome disorder 2p16.3 deletion

Theme: Alphabet and numbers

Quilt currently being assembled
Photo of Stevie L

Theme details

Alphabet and numbers - He also likes fruit

Important: no dogs please.



Biography

Stevie was born in March 2011 after a uneventful pregnancy. He was an incredibly unsettled baby right from the start and spent much of his early weeks screaming. Our health visitor became increasingly concerned with each visit as he never seemed contented. When he was 6 weeks old during the bank holiday weekend we rushed him to A&E after he had been crying all day, his tummy has distended and his skin had developed a mottled appearance. During this visit he was seen by 2 doctors who both diagnosed him with silent reflux and he was medicated straight away. At 5 months old his silent reflux turned to classic reflux and he spent the next 6 months vomiting after every feed. Thankfully it didn't seem to bother him too much and he continued to grow and gain weight but it was difficult for us to cope with each day.

He met all of his early milestones, sitting at 6 months and walking just after his 1st birthday and it wasn't until he was about 15 months that we started to suspect there was something wrong. He wasn't responding to his name and was showing signs of repetitive behaviour. He couldn't sit still for a second and his arms were constantly flapping. At 19 months I approached our health visitor and raised concerns, at this point he wasn't making eye contact and hadn't begun babbling or making any attempts at starting to talk. He was also having what we suspected were absent seizures. Thankfully she took us seriously straight away and made referrals to various professionals. A few months later Stevie began having speech and language therapy and play sessions with a portage worker. It soon became clear to them (and us) that there was more going on and he was soon referred to the Child Development Service for a full assessment.

Stevie started attending a specialist nursery (attached to our local special school) when he was 2 and a half. It was there that further assessments were done and a week after his 3rd birthday he received a diagnosis of autism and severe learning disabilities. His paediatrician always suspected that there was an underlying genetic cause for his difficulties as Stevie is noted to have some dysmorphic facial features, so were soon offered genetic testing. In September 2014 Stevie received a diagnosis of 2p16.3 micro deletion. It means he has a small part of his 2nd chromosome missing. This part contains a really important gene called NRXN1 which scientists know is linked to neurological and psychiatric disorders. Like other children with the same condition it was discovered that he has a heart murmur that will need to be closely monitored over the next few years. He also has vision problems. He has to wear an eye patch to try and correct a squint and glasses to improve his vision.
Stevie was non verbal until he was 4 and a half and although he has now started talking he still relies on Makaton and visual symbols to help make himself understood. The attends a wonderful specialist school where he is in a class with 8 other boys supported by 6 staff, which he absolutely loves!

That's enough about his medical conditions, now let us tell you a bit more about him. Stevie is one of the happiest boys I know, who lights up a room as soon as he walks in. He has boundless energy and is a real whirlwind. Once you've met he's hard to forget!

I've been stitching for Love Quilts since before he was born so I can't wait to finally make a square for his quilt and see what wonderful squares are made for him.



Patterns


1.Pattern is called "abstract sampler" and is from a very old magazine, the name of which I can't remember. Lower case alphabet in shades of red and grey.Stitcher: Sue Torode, Farnborough, UK
Received

2.Colourful numbers with cartoon giraffe and birdStitcher: Emma Swift, Aberdeen, UK
Received

3.Home-designed alphabet sampler using fruit wherever possible e.g. A apple, B banana Stitcher: Pat Brown, Fareham, England
Received

4.From my stash... Numbers with two bears in the opposite corners Stitcher: Gloria , Sallanches , France
Received

5.Square divided in 4 with a number and corresponding fruit pictures in each quadrant (ie, "3" with three cherries) May add alphabet phrase (ie, C is for Cherry) depending on space. Stitcher: Jessica, Cambridge, ON, Canada
Received

6.'the showman'raymond Briggs, cross stitch pattern, head and shoulders. I will surround him with the alphabet/numbers.Stitcher: Julie, Portgordon, Scotland
Received

7.Whistling Doe The very hungry caterpillar, will add numbers Stitcher: Sandra, Shefford, England
Received

8.From PatternStitchShop on Etsy. Alphabet in bright colours.Stitcher: Anne, Sandefjord, Norway
Received
https://www.etsy.com/uk/listing/385046124/cross-st...

9.Own design Jigsaw pieces either together or separately with alphabet/numbers on themStitcher: Alison, Ashford, UK
Received

10.Postman Pat with number borderStitcher: Leanda Vickers, Oldham , England
Received

11.Frog number samplerStitcher: Jennifer Urquhart, Glasgow, Scotland
Received

12.Label Stitcher: Kim Lawrence, Bedworth, England
Received


Squares received

Cross stitch square for Stevie L's quilt
Stitched by: Kim Lawrence
Submitted: May 2017

Cross stitch square for Stevie L's quilt
Stitched by: Sue Torode
Submitted: Apr 2017

Cross stitch square for Stevie L's quilt
Stitched by: Emma Swift
Submitted: Apr 2017

Cross stitch square for Stevie L's quilt
Stitched by: Pat Brown
Submitted: Feb 2017

Cross stitch square for Stevie L's quilt
Stitched by: Gloria
Submitted: May 2017

Cross stitch square for Stevie L's quilt
Stitched by: Jessica
Submitted: May 2017

Cross stitch square for Stevie L's quilt
Stitched by: Julie
Submitted: Feb 2017

Cross stitch square for Stevie L's quilt
Stitched by: Sandra
Submitted: Mar 2017

Cross stitch square for Stevie L's quilt
Stitched by: Anne
Submitted: Apr 2017

Cross stitch square for Stevie L's quilt
Stitched by: Alison
Submitted: May 2017

Cross stitch square for Stevie L's quilt
Stitched by: Leanda Vickers
Submitted: Feb 2017

Cross stitch square for Stevie L's quilt
Stitched by: Jennifer Urquhart
Submitted: Jun 2017


Fabric

Fabric for Stevie L
Fabric for Stevie L

Card

Card for Stevie L
Stitched by: Sandra

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