Alisha was born full term via planned C Section due to mums medical condition.
No concerns at birth until first vaccination at 6weeks when Alisha became unwell. High temperature and piercing screams. Recovered from reaction and at 8months old noticed not developing as she should.Unable to sit unaided, petit mal seizures approx. 30 a day.
Commenced on merry go round of hospital appointments with Great Ormond Street, Addenbrookes, Queens Medical Centre, Sheffield Children Hospital.Originallu diagnosed with Angelmann Syndrome but later SWAN following extensive gene testing.
Alisha also has severe scoliosis and as yet has not had surgery. We are awaiting an appointment later this month to confirm ? surgery, very reluctant to do this due to von willibrand disease.
Alisha is a happy child, she is non mobile, however is unable to talk.She needs to be fed due to lack of co ordination and she is doubly incontinent. Alisha requires 24hr care to meet all her needs as she is unable to do this for herself.
She is wheelchair bound, requires hoisting for all transfers and our home has been adapted to meet her needs, hoisting, chairs, bathroom and special needs bed.
Alisha loves life, music, dance, and pretty things.
Alisha has endured pneumonia, seizures, extensive investigations, # shoulder, aspirations due to drooling, severe constipation and due to being non verbal has to endure on a daily basis difficulty expressing her needs.
Due to Alisha health needs she is educated at home to maintain her health.