Belle E's quilt    (Quilt Completed)

Thank you

It's absolutely amazing, she cried when she opened it, it's absolutely all that she loves, it's just perfect thank you so much xxx

Finished photos

Individual squares

Card

Stitched by: Leanne Malcolmson

Biography

In a routine scan at the latter end of my pregnancy we were met with a day I would never forget. The radiographer went completely silent and told us she would have to fetch the consultant. We were told that there was fluid in our daughters lungs known as a chylothorax. We were told a long list of what could be wrong with our daughter including she may not survive. I went into labour at 34 weeks but with medication this was stopped and I gave birth at 36 weeks. Izzy was whisked immediately to special care after her being resuscitated We had no idea whether she was alive until we managed to see her one hour later. She was in special care for almost two weeks.

As a baby she was not achieving her goals, she was not rolling over or sitting up. After various visits to professionals we were informed that Isobelle had cerebral palsy. This predominately affected her left side however she has joint pain every day. She suffers from chronic fatigue that leads her to be wiped out and not able to do things which can be frustrating for her. She suffers from myoclonic jerks and has no control over her legs and arms which can just hit out - she describes it as an electric shock. Isobelle has had speech therapy but her speech is difficult when she is tired and she gets embarrassed. Isobelle struggles every day due to the pain and fatigue but she never gives up and she never gives in.