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LoveQuiltsUK - Scarlett L's quilt

Scarlett L's quilt    (Quilt currently being assembled)

Born:September 2007
Illness: Mutation of gene DYNC 1H1, Polymicrogyria, visually impaired, cataracts, epilepsy, hypotonia,

Theme: Hearts and Fairies

Quilt currently being assembled
Photo of Scarlett L

Theme details

Hearts and Fairies - Backfilled quilt



Biography

Scarlett was born at home after a normal pregnancy and birth. She struggled to feed and was a very unhappy and lost weight rapidly. Scarlett had frequent spasms that woke her up and we didn't realise these were seizures. Scarlett was admitted to hospital at 6 weeks as failure to thrive and testing began.

Scarlett had first tonic clonic seizures at 4 months and rapidly she was having seizures every day. Infantile spasms started at 5 months and we battled with uncontrollable seizures for the next 5 years.

Cataracts appeared just after her first birthday and were successfully removed although her vision is now impaired and she does not have any peripheral vision and can only see up to an arms length away.

Scarlett had a gastronomy fitted at 3 years and has all her meds and milk through this.

She began the ketogenic diet to help control her seizures at 5 years old as we can tried and run out of drug options. The diet has been really beneficial to her and although she has seizures every day they usually self resolve and do not require rescue medication.

Scarlett is a full time wheelchair user and is reliant on us for all her daily needs and care.

She is generally a happy smiley girl, who is stunning red headed beauty and we love her very much.



Patterns


1.Stitcher: Nicola, Elland, UK
Received

2.Stitcher: Ellie, London, UK
Received

3.Stitcher: Rebecca, Kettering, Northants, UK
Received

4.Stitcher: Gilly, Ellesmore Port, England
Received

5.Stitcher: Angie, Belper, UK
Received

6.Stitcher: Cath, Nottingham, UK
Received

7.Stitcher: Carol Ayling, Copthorne, UK
Received

8.Stitcher: Julie, Portgordon, Scotland
Received

9.Stitcher: Emma Swift, Aberdeen, UK
Received

10.Stitcher: Kirsty Smith, Bowburn, UK
Received

11.Stitcher: Lisa Toner, Morecambe, UK
Received

12.Label Stitcher: Sandra, Shefford, England
Received


Squares received

Cross stitch square for Scarlett L's quilt
Stitched by: Sandra
Submitted: Feb 2018

Cross stitch square for Scarlett L's quilt
Stitched by: Nicola
Submitted: Jul 2017

Cross stitch square for Scarlett L's quilt
Stitched by: Ellie
Submitted: Sep 2017

Cross stitch square for Scarlett L's quilt
Stitched by: Rebecca
Submitted: Sep 2017

Cross stitch square for Scarlett L's quilt
Stitched by: Gilly
Submitted: Sep 2017

Cross stitch square for Scarlett L's quilt
Stitched by: Angie
Submitted: Sep 2017

Cross stitch square for Scarlett L's quilt
Stitched by: Cath
Submitted: Sep 2017

Cross stitch square for Scarlett L's quilt
Stitched by: Carol Ayling
Submitted: Oct 2017

Cross stitch square for Scarlett L's quilt
Stitched by: Julie
Submitted: Oct 2017

Cross stitch square for Scarlett L's quilt
Stitched by: Emma Swift
Submitted: Oct 2017

Cross stitch square for Scarlett L's quilt
Stitched by: Kirsty Smith
Submitted: Nov 2017

Cross stitch square for Scarlett L's quilt
Stitched by: Lisa Toner
Submitted: Nov 2017


Card

Card for Scarlett L
Stitched by: Harriet

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