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LoveQuiltsUK - Holly C's quilt

Holly C's quilt   (Quilt Coming Soon)

Born:October 2014
Illness: Niemann-pick type c disease

Theme: Female Disney Characters

Quilt will open soon, keep checking back!
Photo of Holly C

Child Interests

Holly enjoys small toys she can hold in her hand and watching Disney films like toy story and tinker bell, she likes pinks and purples


Holly was born in October after a uneventful pregnancy, and until her 1st birthday she hit all her major mile stones e.g. turning over, sitting up, crawling and pulling up to stand, in the April following her birthday she was taking into our local hospital with a nasty ear infection and they discovered that she had a large spleen and swollen liver and began testing for various health conditions with these symptoms, she was sent to Birmingham children's for a bone marrow aspirant and they took bloods for metabolic
In the June we was given the devastating news that she had niemann-pick type c, which is a Neurodegenerative disease that causes sufferers to forget things they have learned, sometimes called childhood Alzheimer's, in the 18 months that she has being diagnosed holly has had numerous stays in hospital and is now fed by a nasal gastric tube and has lost all her abilities, she can no longer sit by herself without support and can't crawl anymore, she has since September also being diagnosed with Crohn's disease which causes her to have lots of problems with digestion and weight gain

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