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LoveQuiltsUK - Lilee-Anne G's quilt

Lilee-Anne G's quilt    (Quilt currently being assembled)

Born:April 2012
Illness: Ventriculomegaly,hydrocephalus, absent corpus callossum, small cerebellum, large retrobeller cyst

Theme: Unicorns/Rainbows

Quilt currently being assembled
Photo of Lilee-Anne G

Theme details

Unicorns/Rainbows - Backfilled quilt



Biography

Found out at 20 weeks anomaly scan and was told to terminate due to problems they found but we would never do that then was told she wouldn't survive birth, so was a really emotional pregnancy not knowing if we were arranging for a birth or a funeral. She spent 24 hours in NICU then came to me on ward, she was unable to latch on for breast feeding which was upsetting but took to bottle fine, went home after 7 days due to me haemmoraging and borderline transfusion. At 3 months old noticed lilee-anne having vacant episodes and spasms we were told it was normal for children that age which we didn't agree so pushed for referral and at 8 months old diagnosed with west syndrome and infantile spasms. She's had over 70 hospital admissions mist to resus first, her very first seizure was january 2013 and lasted for over 2 1/2 hours as she is hard to canulate due to thread veins now waiting for a portocath and a VNS,she had major hip reconstruction due to dislocation as no socket and is peg fed



Patterns


1.Stitcher: Nicola Dove, Barnsley, UK
Received

2.Stitcher: Olive, Reydon, UK
Received

3.Stitcher: Julie, Portgordon, Scotland
Received

4.Stitcher: EE(Beth)Filmer, Adelaide, Australia
Received

5.Stitcher: Julie, Portgordon, Scotland
Received

6.Stitcher: Debbie, St Neots, UK
Received

7.Stitcher: Pat Brown, Fareham, England
Received

8.Stitcher: Diana, Sussex, UK
Received

9.Stitcher: Diana, Sussex, UK
Received

10.Stitcher: Yvonne, Devon, UK
Received

11.Stitcher: Sarah, Leeds, UK
Received

12.Label Stitcher: Sandra, Shefford, England
Received


Squares received

Cross stitch square for Lilee-Anne G's quilt
Stitched by: Sandra
Submitted: Mar 2018

Cross stitch square for Lilee-Anne G's quilt
Stitched by: Nicola Dove
Submitted: Dec 2017

Cross stitch square for Lilee-Anne G's quilt
Stitched by: Olive
Submitted: Jan 2018

Cross stitch square for Lilee-Anne G's quilt
Stitched by: Julie
Submitted: Jan 2018

Cross stitch square for Lilee-Anne G's quilt
Stitched by: EE(Beth)Filmer
Submitted: Jan 2018

Cross stitch square for Lilee-Anne G's quilt
Stitched by: Julie
Submitted: Feb 2018

Cross stitch square for Lilee-Anne G's quilt
Stitched by: Debbie
Submitted: Feb 2018

Cross stitch square for Lilee-Anne G's quilt
Stitched by: Pat Brown
Submitted: Feb 2018

Cross stitch square for Lilee-Anne G's quilt
Stitched by: Diana
Submitted: Feb 2018

Cross stitch square for Lilee-Anne G's quilt
Stitched by: Diana
Submitted: Feb 2018

Cross stitch square for Lilee-Anne G's quilt
Stitched by: Yvonne
Submitted: Mar 2018

Cross stitch square for Lilee-Anne G's quilt
Stitched by: Sarah
Submitted: Mar 2018


Card

Card for Lilee-Anne G
Stitched by: Sarah Murphy

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