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LoveQuiltsUK - Harry R's quilt

Harry R's quilt    (Quilt Closed)

Born:January 2010
Illness: Dravet Syndrome

Theme: Mickey Mouse Clubhouse

Date opened: 9th May 2018
Date closed: 12th May 2018
Deadline: 27th Aug 2018

Photo of Harry R

Theme details

Mickey Mouse Clubhouse - Mickey and his gang

Child Interests

Harry is crazy about Mickey Mouse, he is also a huge football, and basketball fan.


Harry was a healthy beautiful baby when he was born. When he was only a couple of months old we noticed some very strange jerking but as first time parents we thought this was just what babies done. When harry was 4 1/2 months old on a very warm day, Harry went into a seizure that lasted 25 minutes, initially this was put down to a febrile seizure. He recovered well and within a couple of weeks the seizures got worse, they were getting longer and more violent. At the age of 8 1/2 months old he was then diagnosed with a Dravet Syndrome. A very rare and catastrophic form of epilepsy,.

When he was 10 months old he went onto have a seizure lasting almost 5 hours and ended up on life support and intensive care. He is on a huge cocktail of drugs to try and keep the seizures at bay. We never thought he would see his 1st birthday. Today due to his condition, he is severe global developmental delays, speech delay, Autism, hyper mobility. The list is endless.

Through all his difficulties he is always smiling. My real life super hero.


1.From LQ files Donald Duck walking Stitcher: Nicola, St Albans, UK

2.Mickey standing Stitcher: Ann, Billericay, UK
In Progress

3.LQ files Mickey Mouse RainStitcher: Eileen, Newcastle, UK
In Progress

4.Lq files, designed by Donna Sharpe Mickey’s face Stitcher: Katie Lacy, Amersham, UK
In Progress

5.Love Quilt files - Mickey and PlutoStitcher: Kirsty Smith, Bowburn, UK
In Progress

6.Mickey with Candyfloss (changing Candyfloss to blue from pink) from LQ filesStitcher: Kaz Bowen, Wakefield, UK
In Progress

7.Micky mouse and gang book marks Stitcher: Beth Cotton, Wallasey , UK
In Progress

8.Mickey and Minnie playing football.Walt Disney Sports and Leisure BookStitcher: Leanda Vickers, Oldham , England
In Progress

9.A Punto Croce 85 Goofy Swimming Stitcher: Jan, Hull, UK
In Progress

10.A punto croce mag No 84 Clarabelle and Daisy Star SignsStitcher: Sandra, Shefford, England
In Progress

11.Ultimate cross stitch collection book by leisure arts Various faces of the clubhouse gang Stitcher: Pippa, Surrey, UK
In Progress

12.Label Stitcher: Jenny Elkington, Boston, UK
In Progress

Squares received

Cross stitch square for Harry R's quilt
Stitched by: Nicola
Submitted: May 2018

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