Love Quilts on Facebook

Join us
on Facebook

Love Quilts on Twitter

Follow us
on Twitter

RSS
LoveQuiltsUK - Jake F's quilt

Jake F's quilt    (Quilt Completed)

Born:April 2001
Illness: Leigh’s Syndrome

Theme: Star Wars characters and spaceships/rockets

Quilt delivered: 24th Nov 2018
Photo of Jake F

Thank you

Thank you everyone at Love Quilts Uk, Jake loves his quilt. It is beautiful xxxxx



Finished photos


Photo of Jake Fs quilt

Photo of Jake Fs quilt

Photo of Jake Fs quilt

Photo of Jake Fs quilt

Photo of Jake Fs quilt


Quilted by: Heather

Individual squares

Cross stitch square for Jake F's quilt
Stitched by: Alison Wells (+)
Submitted: Jun 2018

Cross stitch square for Jake F's quilt
Stitched by: EE(Beth)Filmer (+)
Submitted: Aug 2018

Cross stitch square for Jake F's quilt
Stitched by: Gail (+)
Submitted: Aug 2018

Cross stitch square for Jake F's quilt
Stitched by: Jan S (+)
Submitted: Sep 2018

Cross stitch square for Jake F's quilt
Stitched by: Jayne (+)
Submitted: Jul 2018

Cross stitch square for Jake F's quilt
Stitched by: Kay (+)
Submitted: Jul 2018

Cross stitch square for Jake F's quilt
Stitched by: Kirsty Smith (+)
Submitted: Oct 2018

Cross stitch square for Jake F's quilt
Stitched by: Loraine (+)
Submitted: Oct 2018

Cross stitch square for Jake F's quilt
Stitched by: Moira Anne Jeffcoat (+)
Submitted: Sep 2018

Cross stitch square for Jake F's quilt
Stitched by: Nicola (+)
Submitted: Aug 2018

Cross stitch square for Jake F's quilt
Stitched by: Sarah Kerry (+)
Submitted: Jul 2018

Cross stitch square for Jake F's quilt
Stitched by: Val Gilbert (+)
Submitted: Aug 2018


Card

Card for Jake F
Stitched by: Clare Pink

Biography

When I was pregnant with Jake we lost his brother aged 4 to Leigh’s. Leigh’s is genetic. When Jake was born he appeared well and the Drs and we thought we had been lucky and he was well. Sadly not.

At 9 months he started losing skills, stopped sleeping through the night and crying in pain. We thought at first he just had a virus but he just got worse. We got in touch with Birmingham Children’s Hospital and they got a bed for him to go in for tests and monitoring. He had blood, urine, MRI and a muscle biopsy. This confirmed he had Leigh’s. He lost his ability to sit up, developed epilepsy and had repeated muscle spasms. He has now got scoliosis, dislocated wrists, hips, ankles and a knee. He suffers a lot with pain, and has to take numerous medications. His condition is life limited and we don’t know how long we will have him for. He had a peg in his tummy for all his medicines, overnight feeds, and top up feeds when he can’t swallow. He can’t keep his weight on and needs these feeds to stay a healthy weight. He has regular botox to help with the muscle spasms and dystonia.

His health has gone down in the last few years and he has a very low immune system. We have to keep away from crowded places and anyone with an infection. We try to make the most of everyday.

Through all this our gorgeous boy keeps smiling, being cheeky and enjoying life. He can’t say many words - yes, no, more, again and Blues for Birmingham City his favourite football team but he makes sure we know what he wants.


Back to home