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LoveQuiltsUK - Josey L's quilt

Josey L's quilt    (Quilt Closed)

Born:July 2001
Illness: Canavan disease

Theme: Rainbows, dragonflies, butterflies and flyagaric mushrooms

Date opened: 22nd Aug 2018
Date closed: 24th Aug 2018
Deadline: 30th Dec 2018

Photo of Josey L

Theme details

Rainbows, dragonflies, butterflies and flyagaric mushrooms - Fly agaric mushrooms look a bit like the toadstools in Enid Blyton books - red with spots. Purple is a favourite colour (mushrooms should be red of course!)

Child Interests

Music, watching zombie movies, rainbows, the solar system, stars, Katy Perry of course! Her room is purple and grey


Hello, Josey was diagnosed at 3 months old after suffering with seizures. It took 12 days to discover she had a brain disease. All this time we were accused of shaking her as the hospital could not find anything wrong until a CT scan. She was the 7th ever person in the UK to have this disease and was given 3-10 years to live.
Josey has had feeding difficulty since birth and epilepsy. She was in so much pain with reflux until she had a peg fitted so we could feed, give fluids and medication.
She cannot move any part of her body, sit or hold her head and has limited sight. She now suffers severe scoliosis and has breathing difficulties and requires oxygen regularly.
Despite all her issues she just loves being with her family, she is a very aware young lady and very switched on. The hospital and hospice work together to allow Josey to remain at home and we have been guided to carry out many medical interventions for her.
She loves music and met Katy Perry last year and went on stage to watch after hanging out in Katy's compound with her dancers. Josey had an amazing afternoon.


1.Etsy Mandela butterfly with pink outlineStitcher: Becky Keith, Worksop, UK
In Progress

2.Lickity Stitch Cross Stitch Wonders - Dragonfly 1Stitcher: Leanda Vickers, Oldham , England

3.Climbing Goat designs Rainbow dragonfly.Stitcher: Jenny Elkington, Boston, UK
In Progress

4.From what multicoloured butterflies in heart shapeStitcher: Grace Bowles, Southampton , UK
In Progress

5.Michaela Learner - Cross Stitching Guild Patchwork dragonfly Stitcher: Elaine Martin, Birkenhead, Wirral, UK
In Progress

6.Butterflies, dragonflies, rainbows and flygaric mushrooms from various magazines. Bordered square split into 4. Each quarter will show one of the child's 4 interests using various magazine designs.Stitcher: Karen Stephenson, Cambridgeshire, UK
In Progress

7.Punto Cruz Laughing agaric mushroomsStitcher: Karen, St Leonards on Sea , East Sussex
In Progress

8.Alexstitches Multi coloured butterflyStitcher: Ann Woods, Crimplesham, England
In Progress

9.Cross stitcher Feb 2016 Mushrooms in red Stitcher: Kay, Southminster, Essex, UK
In Progress

10.Awesomepatternstudio DragonflyStitcher: Nancy Lowe, Tamworth, UK
In Progress

11.Climbing Goat Designs Rainbow butterfly, Stitcher: Jill Smith, Taunton, England
In Progress

12.Label Stitcher: Sandra, Shefford, England

Squares received

Cross stitch square for Josey L's quilt
Stitched by: Sandra
Submitted: Aug 2018

Cross stitch square for Josey L's quilt
Stitched by: Leanda Vickers
Submitted: Sep 2018

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