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LoveQuiltsUK - Ella-Lee's quilt

Ella-Lee's quilt    (Quilt currently being assembled)

Born:May 2004
Illness: Prader Willi Syndrome

Theme: Animals

Quilt currently being assembled
Photo of Ella-Lee

Theme details

Animals - Backfilled quilt



Biography

Ella was born in 2004. She was a floppy baby at birth and unable to feed. Initially they tried to say she was just a tired baby but after 6 weeks of continued weight loss she was admitted to hospital. She stayed there for nearly 2 months. During this time Ella was diagnosed with prader Willi syndrome.

She is 14 now and takes every thing in her stride. She is also diagnosed with autism, pituitary gland doesn’t function so all her hormones are artificial including growth hormone. At 14 she is the size of an average 10 year old. She has to take oestrogen to prevent further illness like osteoporosis. She has poor muscle tone so has continued chest infections and similar, weakened inune system, hypermobile joints and many more difficulties. Obviously typically for prader Willi syndrome she food seeks and her world revolves seeking her next meal and how she can get access to food.

Even with everything that life throws at her she always has a smile on her face and loves life. She is fanatical about animals and jigsaw puzzles



Patterns


1.Stitcher: Kaye S, Bangor, Northern Ireland
Received

2.Stitcher: Nicola, St Albans, UK
Received

3.Stitcher: Celia, Newsham & Aislaby WI, UK
Received

4.Stitcher: Nicola, Elland, UK
Received

5.Stitcher: Pam Codman, Tunbridge Wells, UK
Received

6.Stitcher: Julie, Portgordon, Scotland
Received

7.Stitcher: Embroiders Guild, Plymouth, UK
Received

8.Stitcher: Gilly, Ellesmore Port, England
Received

9.Stitcher: Gilly, Ellesmore Port, England
Received

10.Stitcher: Megan, Victoria, Canada
Received

11.Stitcher: Ruth Horn, Co Durham, GB
Received

12.Label Stitcher: Jan, Hull, UK
Received


Squares received

Cross stitch square for Ella-Lee's quilt
Stitched by: Kaye S
Submitted: Nov 2014

Cross stitch square for Ella-Lee's quilt
Stitched by: Nicola
Submitted: May 2015

Cross stitch square for Ella-Lee's quilt
Stitched by: Celia
Submitted: Jun 2015

Cross stitch square for Ella-Lee's quilt
Stitched by: Nicola
Submitted: Oct 2016

Cross stitch square for Ella-Lee's quilt
Stitched by: Pam Codman
Submitted: Mar 2017

Cross stitch square for Ella-Lee's quilt
Stitched by: Julie
Submitted: Jul 2017

Cross stitch square for Ella-Lee's quilt
Stitched by: Embroiders Guild
Submitted: Aug 2017

Cross stitch square for Ella-Lee's quilt
Stitched by: Gilly
Submitted: Jul 2018

Cross stitch square for Ella-Lee's quilt
Stitched by: Gilly
Submitted: Jul 2018

Cross stitch square for Ella-Lee's quilt
Stitched by: Megan
Submitted: Jul 2018

Cross stitch square for Ella-Lee's quilt
Stitched by: Ruth Horn
Submitted: Aug 2018

Cross stitch square for Ella-Lee's quilt
Stitched by: Jan
Submitted: Nov 2018


Card

Card for Ella-Lee
Stitched by: Kaz Bowen

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