Jaeden J's quilt    (Quilt Closed)

Theme details

Football - Manchester United is his team

Child Interests

Jaeden’s loves football especially Manchester United.. his favourite colour is red

Biography

Jaeden became poorly at 8 weeks old after his first set of immunisations. The day after he got a cold and a bad cough and was breathing very heavy. I took him to A&E he got treated with an antibiotic but Jaeden never responded to it. The hospital did test after test. weeks later results came back he never had an immune system. He got transferred to a specialist hospital in Newcastle.. where further test got carried out.

Months later he was discharged home with lots of medication I got trained on a medicine which Jaeden still has now to give him extra protection from bugs and viruses.

In 2011 we went to Scotland for my sisters wedding. Jaeden had what I thought caught a bug. His weight dramatically fell off him he look drawn and unwell.. the following week we had a follow up appointment in Newcastle. Jaeden's consultant took one look at him and had him admitted. He had to have a feeding tube inserted and they started him on a high calorie milk as Jaeden just stopped eating. He never tolerated the milk well, he was often sick and had diarrhoea.

During that stay Jaeden's consultant was concerned in how the sickness and diarrhoea had a dramatic effect on Jaeden.. so with close discussions and thoughts. We decided to go ahead with a bone marrow transplant.

The transplant took place in August 2012. I could not kiss him or hug him. As he had chemotherapy for 10 days.. this journey was very difficult. There was ups and downs and a few trips to ICU. 10 months later we got discharged home with strict rules. He was wrapped in a bubble. Jaeden got his diagnosis name of Nemo deficiency, when his teeth started to come threw as they grow different. He couldn't go to play centres or be around children. Jaeden has been in and out of hospital even after transplant. He also got diagnosed with colitis.

This is very brief and short regarding Jaeden's life as he has been through it. Jaeden to this present day is doing well he is in full time school and enjoying it. He is still on medication and regular follow up appointments. Even tho Jaeden is 10 he is the size of a 5 year old. So know they are looking at his growth because he was so poorly it may have effected his bones.he eats well know as he is on medication to control his colitis A quilt will mean so much to him as he always like be snug.

Patterns

Squares received

Card

Stitched by: Sandra