Love Quilts on Facebook

Join us
on Facebook

Love Quilts on Twitter

Follow us
on Twitter

LoveQuiltsUK - Esmae L's quilt

Esmae L's quilt    (Quilt Closed)

Illness: Cerebral Palsy

Theme: Dolls and Princesses

Date opened: 30th Jan 2019
Date closed: 3rd Feb 2019
Deadline: 26th Jun 2019

Photo of Esmae L

Theme details

Dolls and Princesses - Esmae loves dolls (the sort young children play with)

Child Interests

Esmae LOVES dolls, dogs and girly things.
Esmae's favourite colours are yellow and pink.


Me and my husband were shocked and delighted to find out we were expecting identical twins back in 2014! What a blessing! Things were going well until about 27 weeks when our sonographer revealed the girls were showing signs of TTTS or twin to twin transfusion syndrome. This happens to identical twins who are sharing the same placenta. The placenta malfunctions and feeds one twin all the nutritional blood and oxygen and starves the other. The doctor told us they would monitor and induce labour if necessary.
We made it to 35 weeks when labour started naturally, but Esmae was showing signs of distress. She was born breech and wasn't breathing. We thought we'd lost her, I felt so helpless as I was still in labour with Esmae's twin sister.

After 3 resuscitations Esmae stabilised and was quickly taken to the NICU. Her blood levels were low and she was very anaemic and bruised from the difficult labour.

At first she was tube fed, but after 10 days they allowed her home with her twin. She continued to have feeding problems, suffering reflux but she seemed to slowly improve.

At around 6 months old, we noticed there was a huge gap in the rate of development between her and her twin. By 12 months her twin was walking and doing all the things she should. Esmae could only roll from her back to her tummy and needed help with everything. We were referred to a paediatrician and after an MRI scan she confirmed Esmae has cerebral palsy. She was unsure if Esmae would ever walk.
Esmae is now 3 and doing so well bless her! Her speech is very delayed, she has learning difficulties, but she has worked so hard in physiotherapy and over Christmas has begun to take independent steps and walk a little!

She still uses her Kaye Frame as she's unsteady some days' When out and about its safer to use her special buggy, but she's striving for independence!
She attends the same special school as her older brother, in the nursery department.
She's due to have an operation to correct her eye squints this year. She may need a big operation when she's a bit older to cut the tendons that cause her the muscle spasticity in her legs.
She also wears AFO splints to strengthen her collapsed ankles.
She's our little firecracker and nothing will stop her!


1.LQ files Aurora in a heart by Merete LangsethStitcher: Rosemary Binnie, Macclesfield, UK

2.World of Cross Stitching magazine date unknown A selection of Russian dollsStitcher: Sue Torode, Farnborough, UK

3.Laundry Day from Cross Stitcher magazine February 2012 Gorjuss Doll sitting on a washing lineStitcher: Nicola, St Albans, UK

4.WOXS magazine #147 Bedtime Stories - Girl holding a doll in a pink dress Stitcher: Julie, Anglesey, Wales

5.SODA Stitch Princess Collection SODA Stitch PrincessStitcher: Jan S, Enid, Oklahoma, USA
In Progress

6.LQ Files Ariel by Harriet MorrisonStitcher: Nicola Staples, Gosport, UK
In Progress

7.Baby Minnie Mouse holding a dollStitcher: Emma Swift, Aberdeen, UK
In Progress

8.LQ patterns Cinderella with rose borderStitcher: Barbara, Midhurst , UK
In Progress

9.Cartoon rag doll - own designStitcher: Joanne Heap, Liverpool, UK

10.Lucy Heaton Rapunzel in a towerStitcher: Rebecca, Kettering, Northants, UK
In Progress

11.Snow white in oval frame from LQ files Snow white in oval frame from LQ filesStitcher: Shelli Rippetoe, USA
In Progress
fb group

12.Label Stitcher: Jill Smith, Taunton, England

Squares received

Cross stitch square for Esmae L's quilt
Stitched by: Jill Smith
Submitted: Mar 2019

Cross stitch square for Esmae L's quilt
Stitched by: Rosemary Binnie
Submitted: Apr 2019

Cross stitch square for Esmae L's quilt
Stitched by: Sue Torode
Submitted: Apr 2019

Cross stitch square for Esmae L's quilt
Stitched by: Nicola
Submitted: Feb 2019

Cross stitch square for Esmae L's quilt
Stitched by: Julie
Submitted: Mar 2019

Cross stitch square for Esmae L's quilt
Stitched by: Joanne Heap
Submitted: Apr 2019


Card for Esmae L
Stitched by: Sandra

Back to home