Haimish P's quilt    (Quilt Completed)

Thank you

Hi we have received the quilt it's absolutely beautiful and my son loves it and is so happy. Thanks so much.

Finished photos

Individual squares

Card

Stitched by: Heather Jepson

Biography

At my 20 week scan we were told that something didnt look right with his heart. Within 72 hours we were in St Michael's with a diagnosis which they said was linked to 22q. They kept saying that we could terminate and go on to have more children which wasn't a option for either of us. After that we would be in Bristol every 3 weeks to see how our son's heart was growing to see if I would be able to have him in our local hosptial or if i would need to be in Bristol. Luckily I could have him in our local hosptial but there was still a chance that he would needed to he rushed off to Bristol for surgery. They told me to prepare for a blue baby.

When I had him he was pink and oxygen levels were at 92 so after a week we took him home. He has severe reflux and he would never settle.

His health deteriorated rather rapidly whilst we were waiting for him to grow, by 4 months his sats had dipped to 58 and was rushed in for open heart surgery, a day I knew was coming for 8 months, but no amount of time can prepare you for that.

At around 6 months he was diagnosed with moderate to severe hypermobility and hypotonia as he couldn't even hold his own head to feed. We were told he wouldn't walk until at least 3 but with intensive physio he was walking by 14 months.

He is now 3 and every day is full of therapies and specialists etc.