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LoveQuiltsUK - Phoebe C's quilt

Phoebe C's quilt    (Quilt Completed)

Born:August 2015
Illness: Cerebral palsy

Theme: Soft animals

Quilt delivered: 17th Feb 2019
Photo of Phoebe C

Thank you

Coming soon...



Finished photos

Coming soon...


Quilted by: Leanda

Individual squares

Cross stitch square for Phoebe C's quilt
Stitched by: Alice Watts (+)
Submitted: Jun 2017

Cross stitch square for Phoebe C's quilt
Stitched by: Ann (+)
Submitted: Feb 2018

Cross stitch square for Phoebe C's quilt
Stitched by: Carol West (+)
Submitted: Oct 2015

Cross stitch square for Phoebe C's quilt
Stitched by: Jill Smith (+)
Submitted: Jul 2011

Cross stitch square for Phoebe C's quilt
Stitched by: Kirsty Edgcumbe (+)
Submitted: Nov 2014

Cross stitch square for Phoebe C's quilt
Stitched by: Leanda Vickers (+)
Submitted: Feb 2019

Cross stitch square for Phoebe C's quilt
Stitched by: Leanne Malcolmson (+)
Submitted: Nov 2018

Cross stitch square for Phoebe C's quilt
Stitched by: Leanne Malcolmson (+)
Submitted: Dec 2018

Cross stitch square for Phoebe C's quilt
Stitched by: Lou Lou (+)
Submitted: Apr 2015

Cross stitch square for Phoebe C's quilt
Stitched by: Margery (+)
Submitted: Mar 2018

Cross stitch square for Phoebe C's quilt
Stitched by: Shell (+)
Submitted: Apr 2015

Cross stitch square for Phoebe C's quilt
Stitched by: Staff and Students of Bromsgrove School (+)
Submitted: Nov 2017


Card

Card for Phoebe C
Stitched by: Leanne Malcolmson

Biography

Phoebe is a twin, she is twin 1, they where born prematurely at 34 weeks. Her sister was the poorly baby when they where born Phoebe was doing fantastically. She moved from nicu to special care within a week. On day 15 Phoebe had 2 major bleeds in her brain, one on each side and from this point she lost the movement in her legs and arms and also lost her sucking reflex. The next day the consultant told me that it was touch and go if she would make it through the night and if she did then she would be in a vegetative state. A few days later Phoebe woke up, she was out of the danger zone and was discharged a week later.

After a few days at home Phoebe became unwell and it was aspiration of milk and her swallow was unsafe so we were admitted back into hospital to have a NG tube fitted, which later got changed to peg then button. When Phoebe was around 3 months old we had a neurosurgeon appointment who said Phoebe had hydrocephalus and she needed brain surgery. Two days later she was having EVT done which lasted 7 months, she then had another brain surgery to have a shunt fitted which only lasted 6 months and we had to go back and have it fixed as the shunt had broken. She has recently been back again but luckily it just needed an adjustment.

When Phoebe was 7 months old we attended a consultant appointment and he just mentioned that Phoebe had cerebral palsy, he thought we already knew. From then she has medicine for stiffness, a wheelchair, standing frame and specialist seating. We have had to move house so that she can have a downstairs bedroom and wet room as she can’t get up the stairs and uses her wheelchair for everything. Phoebe has had multiple hospital admission due to her different needs. She also has epilepsy which is controlled through medicine but doesn’t always work. She is learning to communicate using PECS as she can really struggle to communicate and express what she wants and needs.


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