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LoveQuiltsUK - Rosa C's quilt

Rosa C's quilt   (Quilt Coming Soon)

Born:July 2016
Illness: Cystic Fibrosis

Theme: Fairies and Flowers


Quilt will open soon, keep checking back!
Photo of Rosa C

Theme details

Fairies and Flowers - Cicely Mary Baker's Flower Fairies are a favourite



Child Interests

Rosa loves Fairies, and all things girly!

Her favourite colour is pink.


Biography

Rosa was born at 35 weeks, showing signs of breathing difficulties and trouble gaining weight. After 3 weeks we finally took her home seemingly having the "all clear" despite weight gain still being a problem.

Within a few days of coming home we got the call to say Rosa had tested positive for Cystic Fibrosis,we went into the hospital the following day to confirm this and meet the team to get her started on treatment.

Rosa has to take tablets alongside any food containing fat, which can be around 30 tablets a day, along side extra vitamins, inhalers, a daily antibiotic, a nebuliser and various extra medications when she is unwell. She also requires physiotherapy at least twice a day to shift the thick mucus that sits on her chest.

Rosa's CF also means we spend a lot of time away from home admitted into hospital for IV antibiotics (for 2-3 weeks each time), this can be really hard on us all as a family and means splitting up the family as she has a big brother at home.

Despite all this, Rosa is such a delight, full of positivity and shows so much strength and bravery in everything she does.






















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