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LoveQuiltsUK - Shaira S's quilt

Shaira S's quilt    (Quilt Closed)

Born:2011
Illness: Prader Willi Syndrome Hypermobility Hypertonia Global Delay Learning Disability Non Verbal

Theme: Rabbits

Date opened: 27th Feb 2019
Date closed: 1st Mar 2019
Deadline: 26th Jun 2019

Photo of Shaira S

Child Interests

Shaira loves a - z picture cards, Mr Tumble her black rabbit, lambs cooking, fake kitchen and loves her tea set. Favourite colours pink, yellow and bright colours.


Biography

Shaira was born in 2011. She was the older twin and we didn’t know anything was wrong during pregnancy. It was a huge shock to find she was in intensive care straight from birth and they didn’t know what was wrong. Tests eventually after 56 days confirmed she had Prader Willi Syndrome. When we brought her home she was fed through a feeding tube as it was discovered she had an unsafe swallow. Eventually, through patience and syringing small quantities of milk we managed to get her to take a bottle. Many professionals worked with her SALT, Portage Play, physio but she still didn’t take independent steps until she was 5 years old. She still cannot walk very far without needing the wheelchair and at 7 years old we still have no words. It is very very hard having a non-verbal child and also a daily reminder in her twin sister where she should be in her development. Shaira has been under many teams gastro, respiratory, eyes, hips, endo and spinal so hospital clinics have become the normal for us. She never complains and also has a daily growth hormone injection since the age of 14 months. She still uses nappies day and night and she shows little interest in potty training. Shaira's older brother is also disabled with ASD and I suffered a heart attack last year - a huge shock. Nobody knows the strain and stress disabled children bring to a family and the adaption and sacrifices that are made. Despite that Shaira is a much loved member of the family. It’s so hard that because of the PWS she has to miss out on so many treats as her diet has to be kept so healthy and she is supervised around food or food waste. We haven’t as yet had to secure food under lock and key but are ready for when we need to.



Patterns


1.DMC pattern from Watership Down Primrose rabbit Stitcher: Julie Edgcumbe, Haverhill, Suffolk, UK
Received

2.Cute Animals by Lesley Teare RabbitsStitcher: Elaine Dixon, Athens, Greece
In Progress

3.Quick and Easy Cross stitch magazine mid 2000s DMC exclusive design for magazine Somebunny sitting down holding a mug with a heartStitcher: Sally, Hull, UK
Received

4.XS Crazy Issue 240 2 rabbits playing on branch of treeStitcher: Ann, Billericay, UK
Received

5.Flopsy bunnies A. More storybook cross stitch Flopsy bunnies Stitcher: Moira Anne Jeffcoat, Birmingham, England
Received

6.DMC "Animal Patchworks" booklet published in 2001 - will do 4 in different colours to suit theme Patchwork RabbitsStitcher: Pat Brown, Fareham, England
Received

7.Lop-eared bunny from DMC Kit Stitcher: Jackie, York, England
Received

8.World of cross stitching Somebunny dressed as a fairyStitcher: Laura, Thetford, UK
Received

9.Cross Stitcher magazine April 2006 Spring BunnyStitcher: Shirley, Ipswich, UK
Received

10.

11.

12.

13.

14.Label Stitcher: Marie, Yeovil, UK
Received


Squares received

Cross stitch square for Shaira S's quilt
Stitched by: Marie
Submitted: May 2019

Cross stitch square for Shaira S's quilt
Stitched by: Julie Edgcumbe
Submitted: Apr 2019

Cross stitch square for Shaira S's quilt
Stitched by: Sally
Submitted: Apr 2019

Cross stitch square for Shaira S's quilt
Stitched by: Ann
Submitted: Apr 2019

Cross stitch square for Shaira S's quilt
Stitched by: Moira Anne Jeffcoat
Submitted: May 2019

Cross stitch square for Shaira S's quilt
Stitched by: Pat Brown
Submitted: Apr 2019

Cross stitch square for Shaira S's quilt
Stitched by: Jackie
Submitted: Apr 2019

Cross stitch square for Shaira S's quilt
Stitched by: Laura
Submitted: Jun 2019

Cross stitch square for Shaira S's quilt
Stitched by: Shirley
Submitted: Jun 2019


Card

Card for Shaira S
Stitched by: Emma Tracey

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